Remembering Javed Abidi: A pioneer of disability rights in the global South

Javed Abidi, India’s towering figure in the disability rights movement, passed away in March, 2018 due to a chest infection, at the age of 53. The legacy he leaves behind is monumental, having spearheaded transformative changes that reshaped how disability is perceived and addressed in India and beyond. We remember him on his birth anniversary, reflecting on his journey, battles, and the mark he left on the world. 

Born this day in 1965 in Aligarh, Uttar Pradesh, Abidi's life was marked by personal challenges from an early age due to spina bifida, a condition that went untreated for years, leading to severe complications. Despite this, Abidi's resolve only grew stronger. After moving to the United States for treatment and education, he graduated from Wright State University well-equipped with both personal experience and academic insight into the world of disabilities. 

Returning to India in 1989 with a determination to make a difference, Abidi ventured into journalism. His path soon took a pivotal turn towards activism, driven by the dire state of disability rights in India. In 1993, he began his official journey into advocacy, laying the foundations for what would become a nationwide movement for disability rights. 

Abidi founded the Disability Rights Group (DRG) in 1994, which quickly became a cornerstone for advocacy in the disability space. His efforts were instrumental in the enactment of India’s Disability Act of 1995, a groundbreaking law that laid the groundwork for future advancements in disability rights in India. Abidi's advocacy did not stop there; he pushed for the inclusion of diverse disabilities in the new Rights of Persons with Disabilities (RPwD) Act 2016, significantly expanding the scope of disability rights and protections. 

In 2013, Javed Abidi was appointed vice-chair of the International Disability Alliance, further amplifying his global influence in advocating for disability rights. Earlier in his career, at politician Sonia Gandhi's invitation, he had established the disability unit at the Rajiv Gandhi Foundation, broadening the impact of his work within India. His proactive approach was also evident in 2004, when a letter he wrote to the Chief Justice of India addressing the need for accessible polling booths for persons with disabilities was transformed into a writ petition. This led the Supreme Court to issue directives ensuring the voting process was made accessible, marking another significant victory in his long list of advocacy achievements. 

Abidi's strategy was clear and pragmatic. He believed in fighting for rights under the democratic framework of India's constitution, advocating for policies and laws that would ensure education, employment, and accessibility for persons with disabilities. His leadership at the National Centre for Promotion of Employment for Disabled People (NCPEDP) was marked by major campaigns that led to significant policy changes, including India's ratification of the UN Convention on the Rights of Persons with Disabilities in 2007. 

Abidi was a strategist who knew that real change required pressing the government and private sectors to adopt inclusive policies. His work transcended partisan politics, working with governments of different ideologies to forward the disability rights agenda. 

Javed Abidi's contributions were not just legislative and policy-driven. He embodied the spirit of "Nothing About Us Without Us," giving a voice to an often overlooked minority and fostering a sense of pride and self-determination among people with disabilities. He believed in the power of collective action and information dissemination, often leveraging his position in New Delhi to mobilise support and advocate for change across various platforms. 

As we mark his birth anniversary, we remember Javed Abidi not just for what he achieved but for the profound influence he had on the lives of millions. We reflect not just on the laws and policies he helped shape but on his underlying belief in dignity, equality, and the potential of every individual. His vision was one of an inclusive society where disability was not an obstacle but a part of human diversity. 

His approach guides many disability advocates in their journeys today and reminds us that real change requires resilience, collective action, a visionary approach, and an unwavering commitment to the rights of all individuals.