Celebrating World Vitiligo Day: Stories of Indian creators with Vitiligo

Millions of people worldwide live with Vitiligo, a condition characterised by the loss of skin pigment. 

This condition causes the skin to turn white or appear lighter than one's natural skin tone due to the destruction of melanocytes, the cells that produce melanin. 

On World Vitiligo Day, we celebrate the stories of creators with vitiligo who use their platforms to spread awareness and promote self-love, showing the world that beauty comes in all forms.

But before that, a quick fact. 

According to this study done by the National Institutes of Health (NIH), the prevalence of vitiligo in India ranges from 0.25% to 4% among dermatology outpatients, with higher rates reported in certain regions like Gujarat and Rajasthan, reaching up to 8.8%.

Despite this, there remains a significant lack of awareness and representation, leading to social stigma and psychological challenges for those with the condition. 

Many people with vitiligo face ostracization, bullying, and severe social and psychological impacts, particularly young women who are pressured to meet conventional beauty standards.

However, representation and inclusivity in the media and fashion industries are slowly beginning to change perceptions.

In recent years, the media has begun to embrace a more inclusive and diverse representation of beauty, prominently featuring individuals with vitiligo. This shift marks a significant departure from the past, where vitiligo was often stigmatised and misunderstood. 

Influencers like Winnie Harlow have played a crucial role in this transformation, using their platforms to challenge conventional beauty standards and inspire others. 

Harlow's rise to fame as a model with vitiligo has opened doors for many others, showcasing the unique beauty and resilience of those with this skin condition.

Television shows, fashion campaigns, and social media platforms are now more frequently highlighting the stories and experiences of individuals with vitiligo. This increased visibility helps to normalise the condition and educate the public, paving the way for more acceptance and understanding. 

Campaigns by major brands, such as the inclusive beauty initiatives by Dove and CoverGirl, have also contributed to this positive trend by featuring models with vitiligo in their advertisements.

But despite these advancements, there is still a long way to go. 

Continued efforts to amplify the voices of people with vitiligo in the media are essential for dismantling stereotypes and promoting a broader definition of beauty. By celebrating diversity and advocating for inclusivity, the media can play a powerful role in changing perceptions and supporting those with vitiligo to live their lives without fear of discrimination or prejudice.

Here are the stories of six remarkable Indian creators who are redefining beauty standards and breaking down the stigma associated with vitiligo.

Mamta Mohandas

The last decade has been incredibly challenging for South Indian actress Mamta Mohandas, as she battled Hodgkin’s lymphoma, a type of cancer. 

True to her style, when she shared her journey with vitiligo, it was with a poetic and hopeful tone that embraced her condition.

In a selfie shared with her two million followers, she wrote, “Dear sun, I embrace you now like I have never before. So spotted, I’m losing color… I rise even before you every morning, to see you glimmer your first ray through the haze. Give me all you’ve got for I will be indebted, here on out and forever by your grace.”

Aastha Shah

Aastha Shah is a Mumbai-based content creator who has captivated audiences with her empowering messages of self-acceptance. 

Diagnosed with vitiligo at 8, Aastha faced many challenges, including societal judgement and a difficult medical journey.

“For years, I struggled with feeling beautiful because of my vitiligo. Today, I walked the red carpet at Cannes, not in spite of my vitiligo but because of it. I want to show everyone that beauty comes in all shades and patterns,” says Aastha. 

She boasts a following of one million on social media, where she shares her journey and motivates others. 

Aastha recently made history as the first Indian with vitiligo to walk the red carpet at the 77th Cannes Film Festival​.

Prarthana Jagan

Prarthana Jagan, a model and social media influencer based in Bangalore, developed vitiligo at the age of 11. 

She faced severe bullying and social isolation due to her condition, which greatly affected her self-confidence. Prarthana wore makeup to conceal her vitiligo for many years until a life-changing surgery in 2016 helped her embrace her natural skin.

“I stepped out bare-skinned into the sunlight and I just can’t express what I felt on that day. I felt sunlight on my bare skin after years. It was just a moment of self-reflection,” Prarthana recalls in a post on her Instagram. 

Prarthana now shares her story on Instagram and YouTube, inspiring others to embrace their unique appearances. 

She has modelled for Elle and Grazia and works with Blunt Model Agency, continuing to raise awareness about vitiligo.

Jasroop Kaur Singh

Jasroop Kaur Singh, a London-based British-Indian model and influencer, creatively expresses her journey with vitiligo through her artwork. 

Jasroop combines her passion for art with advocacy, creating pieces that highlight the beauty of vitiligo.

Despite facing bullying and social isolation growing up, she found confidence in herself and has worked with Vogue, Burberry, and other high-end fashion brands​.

Kirpal Bhogal

Kirpal Bhogal is a London-based content creator and advocate for vitiligo awareness. 

Known for his vibrant personality and stylish content, Kirpal uses his social media presence to educate others about vitiligo and promote inclusivity. 

His efforts have garnered a supportive community that celebrates individuality and encourages open conversations about skin conditions​.

Ranjani Ramakrishnan

Based in Chennai, India, Ranjani Ramakrishnan is a motivational speaker and digital creator who has been very vocal about her journey with vitiligo. 

Diagnosed at age 11, Ranjani struggled with self-acceptance but came to embrace her unique appearance. 

She now works with brands promoting inclusivity and models for Another Life Collective​.

Shantanu Gosavi

Shantanu Gosavi, an Ahmedabad-based model and influencer, uses his platform to challenge stereotypes about vitiligo. 

A graduate in Textile Design from NIFT Gandhinagar, Gujarat, Gosavi is trained in Kathak and works as a freelance textile designer, photographer and model.

He began his modelling journey with local brands, and now collaborates with photographers and fashion brands.

The stories of these creators serve as a reminder that beauty is diverse and multifaceted. 

On World Vitiligo Day, we celebrate their stories and dedication to spreading awareness and representation.