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With deepfakes becoming a global threat, founders call for an increase in funding to women-led AI companies < Back Gender, Work, News Fund women AI founders NOW With deepfakes becoming a global threat, founders call for an increase in funding to women-led AI companies MMS Staff 23 Jul 2024 5-min read In what seems to be the latest in a string of gross misuse cases of AI technology, a teenage schoolboy from Victoria, Australia was arrested last month for allegedly generating and distributing deepfakes of his female classmates. The accused - who shared the images on social media - was caught by police, and soon released without charge. The incident has prompted renewed conversation around the gendered nature of the misuse of this technology and how concrete action can be taken to ensure the safety of girls and women. This is also not the first time AI-generated deepfakes have made their way into schools. Similar events have unfolded in Beverly Hills, California, Spain and New Jersey. And nudes aren’t the only kind of deepfake imagery being made. The last couple of years have seen AI-generated deepfake videos of political speeches, such as this one featuring Duwaraka Prabhakaran, daughter of Tamil Tiger militant chief Velupillai Prabhakaran, who - at the time of the release of this video - had died more than a decade ago. Then late last year, a deepfake video featuring Indian actor Rashmika Mandanna went viral. The actor subsequently tweeted: “...if this happened to me when I was in school or college, I genuinely can’t imagine how could I (sic) ever tackle this.” And more recently, the content creator and actor Bhuvan Bam saw his face in a deepfake, promoting betting in sport. The actor was quick to put out a clarification saying it wasn’t him but a deepfake, and that his team had already filed a police complaint alerting the authorities. On July 8, this story in the Deccan Chronicle mentioned that the Indian government plans to introduce a bill in parliament to put a check on AI technology and regulate online content. ‘According to sources, the bill aims to explore better ways to use technology and develop legal frameworks to address challenges posed by deepfakes and AI-generated content, reflecting the growing global concern about these issues,’ the article said. However, culpability, it seems, doesn’t rest on the creators of deepfake apps. ‘These platforms make money from platforming content but take no responsibility for doing so,’ says the Guardian . Moreover, it has for long now been amply clear that the current landscape of these spaces is marked by a dominance of male perspectives. This story by Routledge points out how this affects the safety of women and girls in the digital world. The emergence of AI-driven deepfake technology has provided perpetrators with frightening new avenues for sexual exploitation, violation and abuse. With the help of this new technology, offenders can seamlessly blend and manipulate different visuals and audio clips taken from social media platforms, cameras placed in public, or private, settings, hacked devices, discussion boards, pornography websites, and other online spaces to create lifelike explicit content.  What is especially alarming is the sheer scale and scope of this phenomenon. Because of this new technology, perpetrators have a nearly limitless capacity to exploit anyone across the globe who has ever been photographed or captured on video. Such malicious content is at risk of being continuously shared, traded, consumed, distributed, and further manipulated by other men participating in these crimes. So, while recent developments in AI tools may be exciting to many, for women and girls in particular, there is a range of current and potential disadvantages and violations. Entrepreneur Cindy Gallop - who runs the crowdsourced social sex video sharing platform MakeLoveNotPorn - reacted to the Victoria news with this LinkedIn post, which reads: “FUND. FEMALE. AI. FOUNDERS. Because that’s the only way we can scale solutions to this.” Gallop’s call for funding for women entrepreneurs working in AI is a growing chorus of voices demanding a more equitable funding - and representation - landscape in AI. AI gender bias is all too common , resulting from skewed data and underrepresentation and misrepresentation of women, which has a bearing on machine learning technology and algorithms, further perpetuating biases, which, in less severe cases manifest in the form of denied opportunities to women, and, in more severe cases, as gender-based violence in the form of deepfakes. This 2019 research shows that women are the primary victims of deepfakes. And a related, concerning trend is the growing use of deepfake technology as a tool of revenge. ‘96% of this type of online videos were of intimate or sexual nature. The victims were primarily women, often actresses, musicians, and to a lesser extent, media professionals. In contrast, videos without explicit content primarily targeted men (61 percent), mainly politicians and corporate figures,’ the study says. While discussions around protecting women’s safety in the AI era are multifaceted, one place to begin could be to have more women representation in tech companies and AI teams, partner up with more women founders, especially in AI, and use feminist data practices to help fill data gaps where women aren’t correctly - or adequately - represented. However, it’s also clear that AI is a space dominated by powerful, wealthy men who, as Gallop puts it, “have no intention of welcoming, listening to, funding, and working with women leaders, founders, technologists, and scientists whose views are not completely aligned with and preferably subordinate to theirs.” “The young white male founders of the giant tech platforms that dominate our lives today are not the primary targets (online or offline) of harassment, abuse, racism, sexual assault, violence, rape, revenge porn. So they didn’t, and they don’t, proactively design for the prevention of any of those things. Those of us who are at risk every single day — women, Black people, people of color (sic), LGBTQ, disabled — design safe spaces, and safe experiences,” she says. Gallop’s thinking and her approach to AI clearly goes to show how data and machine learning technologies not working with datasets that are heavily influenced by the white man’s view of the world can produce AI technology coded with algorithms that ensure women’s safety - both online and offline. Time to rewrite the rulebook - can AI become a tool for empowerment, or will it forever be coded with bias? Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Chris Martin and co’s latest “feelslikeimfallinginlove” celebrates love, representation, and environmental responsibility < Back News, Disability, Climate Coldplay’s new single ft sign language wins hearts globally Chris Martin and co’s latest “feelslikeimfallinginlove” celebrates love, representation, and environmental responsibility MMS Staff 4 Jul 2024 4-min read Seems like Coldplay has captured the hearts of millions yet again with their latest single, ‘Feels Like I’m Falling in Love.’ An ode to vulnerability and connection, the song - a Max Martin production - is the first release from Coldplay’s upcoming album Moon Music, set to drop on October 4. A historic setting for a modern message The music video for “feelslikeimfallinginlove” was shot at the ancient Odeon of Herodes Atticus in Athens, Greece. Directed by Ben Mor, who previously collaborated with the band on ‘Hymn For The Weekend’ featuring Beyoncé, the video features a blend of history and modernity. Fans were invited via the band’s social media to witness the shoot, making the experience inclusive and memorable. A step toward sustainability Upon its release, Moon Music will be available in various formats that adhere to new sustainability standards. Each vinyl copy will be made from nine recycled plastic bottles, and the CD version crafted from 90 percent recycled polycarbonate. These efforts are expected to reduce CO2 emissions in production by at least 78 percent and avoid the use of over five metric tonnes of virgin plastic. Representation matters The video for “feelslikeimfallinginlove” stars Natasha Ofili, who is well-known for her role as Principal Karen Vaughn in Ryan Murphy’s Netflix series The Politician. Ofili, who is Deaf, took charge of the video’s story and creative direction, incorporating her own American Sign Language (ASL) interpretation of the song throughout the video. Her performance is further enriched by the participation of Deaf members from the Venezuelan Sign Language section of El Sistema Venezuela’s Coro de Manos Blancas (White Hands Choir), supported by the Dudamel Foundation. One fan commented on their YouTube channel: “One reason why I love Coldplay so much: They make music for everybody.” Another fan wrote: “I’m a sign language teacher and my uncle is profoundly deaf from birth. I’ve grown up signing and have friends that are deaf. This video is so so beautiful and encapsulates the strength and emotion of sign language. Thank you Chris, Johnny, Will and Guy for not only being the best band ever with the most beautiful music, but for also genuinely caring and loving people. I know you guys probably won’t see this but I need you to know how much you’ve impacted my life and supported me through some dark times. You’re not appreciated enough for your talents and big hearts. Love you loads.” A global impact Coldplay frontman Chris Martin recently wowed fans in Singapore by incorporating sign language into his performance. This act of inclusion resonated deeply with the band’s Gen Z fans and sparked a wave of admiration for him across social media platforms. Coldplay’s efforts towards accessibility underscore the importance of representation in entertainment. By engaging with diverse communities and addressing social issues such as disability, the band sets a powerful example for youth worldwide. Add to that their commitment to sustainability, which inspires fans to embrace these values in their own lives. Something more role models need to consider doing. Looking ahead As Coldplay continue their European tour and prepare to headline Glastonbury for a record fifth time, their influence on music and social advocacy seems to be on a steady rise. With Moon Music, the industry is ushering in a new era of conscious creativity, where entertainment meets social responsibility. Watch the video below - Lyrics I know that this could hurt me bad I know that this could feel like that But I just can’t stop Let my defences drop I know that I was born to kill Any angel on my windowsill But it’s so dark inside I throw the windows wide I know La-la-la-la-la-la-la-la-la I know La-la-la-la-la-la-la-la Still I don’t let go And fields of flowers grow Oh It feels like I’m falling in love Maybe for the first time Baby it’s my mind you blow It feels like I’m falling in love You’re throwing me a lifeline This is for a lifetime, I know I know that in this kind of scene Of two people there’s a spark between One gets torn apart, one gets a broken heart I know La-la-la-la-la-la-la-la-la I know La-la-la-la-la-la-la-la Still I don’t let go And fields of flowers grow Oh It feels like I’m falling in love Maybe for the first time Baby it’s my mind you blow Feels like I’m falling in love You’re throwing me a lifeline This is for a lifetime, I know Feels like I’m falling in love You’re throwing me a lifeline Oh now for the first time I know I’m not alone Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

On the occasion of Helen Keller Day & Deafblind Awareness week, Shrutilata Singh shares her ongoing struggle for inclusion < Back Disability, Gender, Health My mental health as a woman with progressive Deafblindness in India On the occasion of Helen Keller Day & Deafblind Awareness week, Shrutilata Singh shares her ongoing struggle for inclusion Shrutilata Singh 27 Jun 2024 4-min read My name is Shrutilata Singh. I am a woman with progressive deafblindness. Here, the word “progressive” means I am slowly losing both vision and hearing day by day. I completed my Bachelor's degree in English and also earned a diploma in Physiotherapy from an association for the blind. I worked as a paediatric physiotherapist for three years, and for the last two-and-a-half years, I have been working with Sense India, advocating for the rights of people with deafblindness in India. Although deafblindness has been recognized in the Rights for Persons with Disabilities Act of 2016 due to sustained advocacy by Sense India , there is still very little awareness about it. Deafblindness is a unique disability in which two vital senses are affected to varying degrees. In my case, I was able to hear and see much better in my early days, but I have slowly lost most of my vision and hearing. My gender, being a girl, adds to my challenges. I live in a developing country where we hear about various crimes committed against women every day. In school, due to my hearing impairment, I was unable to socialise and faced a lot of discrimination from my classmates as well as educators. They would make me sit separately from others. All these behaviors added to the mental stress that I felt. I felt inferior compared to others. There was no feeling of self-worth as I was made to believe I was different in a negative way and that whatever happened to me was my own fault. At an age when students enjoy time with school friends, I was depressed, isolated, and left behind. I was unsure of what the future held. I wasn't learning academics in school, or any social skills. Today, I have come a long way and learned social skills. But the challenges remain the same. I attend family functions, get-togethers with friends, and even tours with loved ones, but due to communication issues, I always feel neglected. It is not like they do not talk to me while I am there in the group, but the communication is very limited, and I cannot be a part of every conversation. People keep telling me I am inspirational as I have achieved a lot despite my challenges. They think I am positive all the time. But they do not know that it takes a lot of effort to keep myself positive. Every day, I am reminded of the fact that I have progressive deafblindness, have already lost much of my vision and hearing, and will lose what’s remaining as well. Although I know the importance of preparing myself for the future, I still am unable to accept reality. Earlier I found myself in distress when I realised that I could no longer hear my favourite song or read books like before because my eyes got tired. Each time, I’d have to find something else to stay positive. Recently, I underwent cochlear implant surgery. I’m now able to enjoy music, interact with people, and talk on the phone. My interaction with my family and close friends has increased. The role of community and technology is very important in bringing these changes for deafblind people. As an advocate, I work with groups of deafblind people from all over India. Most of them have more or less the same issues. Those with progressive deafblindness find it toughest as their families also need to adjust to the changes and accept them. Deafblindness is still largely a neglected impairment even within the disability community. Many people do not know about dual sensory loss and think that because of this disability we cannot do tasks like other disabled people. We continue to feel like “misfits” within society, even within the disabled community. There have been quite a few incidents when I attended gatherings or programs related to disability but ended up feeling lonely as I could not understand what was going on around me, and it is not possible for those who know how to communicate with me to be there with me all the time. Every now and then, I have to pick myself up and force myself to focus on the positive side. Years ago, I did try to end my life by taking pills, but thankfully changed my mind after thinking about my parents. Although the feelings remain the same, we just learn to cope better. I am glad I have a lot of work to divert my attention from the feelings that threaten to drag me into depression every time. It is a never-ending struggle to fit in with family, friends, and the community. Hence, the role of society as a whole is critical in ensuring that we become active participants in it. People should be aware of how their behaviour towards us affects our mental health. And good mental health is very important to live a happy life. Shrutilata Singh has progressive deafblindness. Since joining Sense International India in April 2020, Shrutilata has been engaging with stakeholders to advocate for Rights of People with Deafblindness in India. She is involved in rights-based advocacy as well as capacity building for family members and fellow young people with deafblindness. Shruti has presented papers in national and international conferences as a role model in Deafblindness. She has also participated and contributed as a speaker at (Global Disability Summit) GDS 2022, (United Nations Girls Education Initiative) UNGEI, (United Nations Conference of State Parties) UNCOSP with latest at Civil Society 20 (C20) Summit 2023. She is also an Executive member of Commonwealth Children and Youth with Disability Network (UNGEI Representative). Connect with her on LinkedIn . Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

The global autistic community shares how they respond to dismissive and ableist comments < Back Community, Neurodiversity Best responses to - “But you don’t look autistic” The global autistic community shares how they respond to dismissive and ableist comments MMS Staff 8 Jun 2024 5-min read Have you ever disclosed your autism to someone, only to have them drill holes in your head with their eyes and give you the classic, "But you don't look autistic" refrain? Though seemingly harmless, this line is more than just a misunderstanding. It shows a deep lack of awareness about the vast spectrum of autistic experiences. For many autistic people, comments like these are hurtful. When our autism goes unrecognized, it leads to a lack of crucial support. We might struggle in social situations or sensory overload without receiving the help that can make a huge difference. Not to mention this also takes its toll on our mental health. Imagine constantly being told a core part of you isn't valid, or being asked to prove your neurodivergence. Makes you feel isolated, confused and even depressed. We've said before, we'll say it again - Autism is a neurological difference, not a physical appearance. Autistic people exist in all shapes, sizes, and personalities. So, the next time someone throws that outdated comment your way, be prepared to respond with confidence and a touch of humor! How? Read on - Our amazing community shared some fantastic responses to "But you don't look autistic". We've written their comments down alongside their Instagram profiles. Oh! I have detachable wings and left them at home today - @ alt.life .immycool Sorry, I'm sharing my autism with a friend right now, so it might be diluted - @charlielittlechild It's so clear to see if you know Autism - @jackie_steed Decides who?! - @karolincze That’s an inside thought Karen … - @aglaematl You don't look like a burden - @le_randomiseur How about now? hand flaps "maybe you can only see it under a black light? - @cantstanja Your observation skills are rather poor, dear. Might I suggest some glasses to help you see my autism? - @yagamilight3000 Do you want me to say “thanks”…? - @karolincze We can't all be Rain Man or the Good Doctor, Karen. - @olivia.shorthair And you don’t look ignorant but here we are - @emhope98 Alright so have you ever heard about specific interests? Mine is [followed by a five minute monologue about very precise information]. Do I look more autistic to you now? If not, you might question your own spectrum. - @lelune_akemi Yes I do! Whether you say I do or not I still do and it will never change! So go away! - @magically_made_photography Shall I flap my wings a bit for you? - @arcanadi You might want to learn what "invisible" meant, would you like a dictionary? - @lelune_akemi Here, try on my glasses. - @jadenikita1998 This is what I say, “Stop, Stop right there. I do not need you to tell me this. I love being autistic, it's so freeing. This diagnosis is a good thing, not a bad thing. I love you, but this isn't a good comment to say to me. Please be happy for me.” - @lightningdragon1 Oh darling, and you don't look like someone who understands the full spectrum of fabulousness! But here we are, defying expectations and slaying stereotypes, one sequin at a time! - @officialqueemo I put whatever object is closest and put it on my head, and then say "how about now?" 😅 - @ audhdantics Well of course not. You can’t see Autism. whispers it’s inside my brain! - @trainerhalsitemshop Is this due to my confidence or hotness levels being at least 137x higher than yours? - @eldritchvampireofthefaewild YOU CAN SEE ME?! - @ andie.ink Really? I must have left my 'Autistic' uniform at home - @booleanhunter AHA… my disguise is working” *walk away laughing evilly - @the_other_abby2007 Oh because I don’t make blunt statements? - @halicope You should see me on a full moon—all of my ‘tism bursts out in full force then. 🌙 - @joannareese7 Well you don’t look allistic but here we are - @neuronandrosepsych Well, I am and I am proud of it! - @revajain__ takes a bow - @infamousswfan That's not really the compliment you think it is - @anjalir283 No? Oh you do!" (Let them wonder for a bit) Then say "See, that's just as weird as saying I don't". - @babette_2000 That's just all the plastic surgery I had 🤣 - @meranaphi Well you don't look normal, but here we are - @ausomecharlie I don't have enough time or crayons to explain the impact of your comment - @monera_ooo I know you're trying to be kind, but it's not where you can see it... it's in my brain! - @themindofmariavivienne I have horns which I file everyday before I leave - @theboywhogrewupasanaspie 1. What am I supposed to look like? 2. In-depth explanation of what masking is 3. Horror story about ABA, if applicable 4. Well you don’t look like a jerk, but here we are. 5. Because I’m not a six-year-old boy? Shocking. /s 6. Yes I do, you just don’t know what you’re looking at. 7. I literally only told you because you caught me doing X autistic thing. 8. That’s not a compliment. 9. Are you sure? start stimming and staring off into space 10. Well you don’t look neurotypical! See how weird that sounds? 11. Sorry, I left my Rain Man costume at home. - @aureliaundertheradar I don't get it. Please explain." (Same as the response to racist/sexist/etc 'jokes') - @creatingwhilelearning But do I SMELL autistic?” Always confuses the hell out of them. Some people actually then say “Ah I see what you mean!” as in, it’s as ridiculous as saying autistic people all smell a certain way. Others don’t get it. So I let them continue to be baffled 💅🏽 - @sniffyjenkins you don't look stupid… - @hollylaike I show true colours only during full moon - @preeti.sharma_27 Hang on, let me just do some autism for you - @comfaclothing I'm undercover. - @kotoku_denjiro I put on the invisible cloak! - @manishachandini You don’t look rude either, but I guess we can’t judge a book by its cover - @thealyssaproject Shit, I must be overdue for my autism-causing vaccine booster - @wdc_nathan Laugh very loudly and leave - @purramids I was wondering if the new mask was working. Turns out it works both ways. You can’t tell I’m autistic and I can’t tell how much of your brain you have left. - @lauraliteatime Remember, the best response depends on the situation and your comfort level. You are autistic, and that's perfectly okay! Some final thoughts: Don't feel obligated to justify your diagnosis (whether you have one or not cuz self-diagnosis is obv valid) Educate politely, but don't feel like you have to be a teacher Embrace your individuality. Being autistic is a strength, not a weakness Let's break down the stereotypes and celebrate the beautiful diversity of the autistic community. With a little understanding and humour, we can create a more inclusive world As always, we'd love to hear from you. Share your favorite responses to "But you don't look autistic" in the comments below. Check out the original post here . Remember, if anyone ever tells you they can't see your autism, you can always tell them you left your invisibility cloak at home. 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The Discovering Hands program is a sureshot game changer in breast cancer screening < Back Disability, Health, News Blind women from India revolutionising early breast cancer detection The Discovering Hands program is a sureshot game changer in breast cancer screening MMS Staff 18 Sept 2024 4-min read Meenakshi Gupta has been blind since birth. She has been trained in a unique skill that many doctors and patients often miss — the ability to detect the smallest lumps in a woman’s breast that may signal the early stages of cancer. Gupta is one of 30 blind women trained through Discovering Hands, a global initiative that equips visually impaired women to become Medical Tactile Examiners (MTEs). For the past two years, Gupta has been working as an MTE at Medanta Hospital in Gurugram, Haryana, as part of a growing movement to improve early breast cancer detection in India. Introduced to India in 2017, the Discovering Hands program has expanded to major hospitals in Bengaluru, Varanasi, Gurugram, and Delhi. In a country where mammography equipment is often scarce, especially in rural areas, the expertise of these MTEs is crucial. Empowering through touch The concept behind Discovering Hands is revolutionary yet simple: train blind women to detect abnormalities in breast tissue. Dr Frank Hoffman, a German gynaecologist, founded the program after observing how many early-stage breast cancer cases were being missed worldwide. His vision led to the establishment of the first MTE training program in Germany, and the model has since spread globally. Gupta, like all the MTEs, underwent nine months of rigorous training — six months of classroom study focused on anatomy and clinical breast examination techniques, followed by a three-month internship. Additionally, she received mobility training, allowing her to navigate independently with her white cane, even through the often chaotic streets of Gurgaon. Despite the challenges, Gupta feels the work is worth the effort. “This role gives me both independence and a sense of purpose. I know that my work can help save lives,” she says. A transformative impact The Discovering Hands program has proven to be a game changer in breast cancer screening. Studies show that MTEs are 30% more effective at detecting tissue changes than doctors. Their ability to detect lumps in the earliest stages — sometimes even before they appear on imaging scans — has been validated through several independent research efforts. In 2023, a pilot study conducted by the University of Erlangen in Germany confirmed that MTEs performed breast exams with the same accuracy as doctors in identifying cancerous tumours. These findings were supported by Indian healthcare professionals like Dr D Pooja, a gynaecologist and CEO of Apar Health, who believes MTEs can make a significant difference, especially in low-resource settings. “A Medical Tactile Examiner’s work is empowering, particularly when many women do not have access to mammograms,” says Dr. Pooja. “It also eases the burden on overcrowded hospitals and clinics.” Overcoming challenges For Gupta, the path to becoming an MTE wasn’t without its difficulties. An arts graduate, her only prior exposure to science had been in high school. “Learning about breast anatomy and conducting clinical exams was tough,” she admits. In training, she practised on silicone models and used skin-friendly tape to map the breast into four zones. Probing each zone with varying pressure, MTEs can locate lumps and document their findings, providing precise information for doctors to follow up. “We examine the texture of each area — whether it’s hard or soft — and note the location, size, and shape of any lump we find,” explains Gupta. “But it’s not our role to diagnose whether a lump is cancerous.” Despite her extensive training, Gupta recalls feeling overwhelmed when she first examined a live patient. “My hands were shaking,” she says, “I worried I might miss something important.” Over time, her confidence grew, and now she examines up to eight patients a day. On average, she flags one or two abnormalities each day for further examination. Changing the landscape of breast cancer detection in India India faces significant barriers when it comes to early breast cancer detection. According to the Ministry of Health and Family Welfare, breast cancer is the most common cancer among Indian women, causing about 75,000 deaths annually. Cultural stigmas around breast exams and limited access to mammography equipment are major hurdles. This is where the Discovering Hands program has had a profound impact. Women are often more comfortable being examined by blind MTEs, and this reduces the stigma associated with breast exams. “The fact that these women are blind actually makes many patients feel less embarrassed,” notes Dr Kanchan Kaur, a breast cancer surgeon at Medanta Hospital. In India, where breast cancer tends to occur at a younger age and late-stage diagnoses are common, early detection can save lives. Nearly half of the cases seen by Kaur are already in advanced stages, when the chances of survival diminish significantly. She believes the program holds enormous potential for India, where only one in two women diagnosed with breast cancer survives. A hopeful future The program has been spearheaded in India by two women: Shalini Khanna Sodhi, Founding Director of the National Association for the Blind’s Centre for Blind Women and Disability Studies, and Dr Kaur. Together, they have been instrumental in establishing the Discovering Hands initiative, providing opportunities for blind women to make a meaningful contribution to society while filling a crucial healthcare gap. “The work these women are doing is vital,” says Sodhi. “They’re not only assisting doctors but also giving visually impaired women dignity and purpose.” Yet, the program’s expansion is limited by funding. Currently, it costs about ₹2 lakh ($2,500) to train each MTE, with much of the program relying on private donations. “If we could expand this model, it could save so many more lives,” Sodhi says. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Union Budget 24 announced yesterday saw an increase of only 0.025 percent in funds allocated to DEPwD < Back Disability, News No mention of disability in budget 2024 speech Union Budget 24 announced yesterday saw an increase of only 0.025 percent in funds allocated to DEPwD MMS Staff 24 Jul 2024 3-min read The Union Budget 2025 was presented by the Finance Minister of India, Nirmala Sitharaman, yesterday, and left the country’s disabled community high and dry yet again. According to the PTI , the Department of Empowerment of Persons with Disabilities (DEPwD) was allocated Rs 1,225.27 crore, a marginal increase from the previous year’s 1,225.01 crore. While disability activists were campaigning for at least a 5 percent allocation of the total union budget to the DEPwD, the current figures park the tally at a mere 0.025 percent of the total national budget for FY 2024-25. The figures add up to a Rs 12 lakh (USD 14,000) increase from last year’s total allocation. A substantial portion of the budget, amounting to Rs 615.33 crore, has been allocated to the National Program for the Welfare of Persons with Disabilities for this fiscal year. This despite the government outlining employment and skilling and social justice as two of the priority areas in the year’s budget. The Politics and Disability Forum put out a post on LinkedIn highlighting the disproportionately small share of the union budget allocated to the DEPwD given the large population of the country. “An analysis of specific allocation reveals further complications with this budget wherein the allocation for Scheme for Implementation of Person With Disabilities Act (SIPDA) has seen systematic decline over the years,” their post read. Disability rights groups and self-advocates, too, voiced their displeasure openly. “Over the years, I have always felt disappointed and spoken against the token mention of disability in budget speeches. This time, the Hon’ble Finance Minister took me too seriously. Disability wasn’t mentioned even once in the budget speech,” said disability rights advocate Nipun Malhotra in a post on LinkedIn. Dr Satendra Singh, disability rights activist, tweeted sarcastically, “Bravo, #Budget2024 ! Inclusive growth by completely forgetting people with disabilities, not even mentioning them once and giving a generous 0.025% of the budget to @socialpwds for our empowerment. Truly redefining #SocialJustice !” “Flagship programs like the Accessible India campaign are underfunded, resulting in missed targets and compromised accessibility. Reduced allocations for the Scheme for the Implementation of Persons with Disabilities Act (SIPDA) make the situation worse.,” wrote Danish Mahajan, founder of Radio Udaan, in a post on LinkedIn. The Scheme for the Implementation of Persons with Disabilities Act (SIPDA) has seen a decrease in budget allocation compared to the last fiscal. The National Platform for the Rights of the Disabled (NPRD) general secretary Muralidharan noted the reduction in support to autonomous bodies such as the National Institutes and the Rehabilitation Council of India, which play crucial roles in rehabilitation and education. He also highlighted the cut in scholarships for students with disabilities, which could force many to PwDs drop out of education. The release put out by the Politics and Disability Forum highlights the consistent underutilisation of allocated budget funds by the DEPwD. “The absence of Persons with Disabilities from this social justice dents the promise of inclusive growth towards Viksit Bharat 2047. A developed India without catering to its 7-8 percent of its population (sic) will only cause marginalisation of this minority,” the release read. The organisation has asked for increased investment in health insurance schemes for PwDs, specific budget allocations for disability across ministries, high-quality assistive aids, uniform state disability pensions, and long-term skill development programmes. Social sector highlights from Budget 2024-25: Youth Employment: ₹2 lakh crore allocated for job creation Agriculture: ₹1.52 lakh crore for agricultural development Women Empowerment: ₹3 lakh crore for women-focused schemes Urban Development: ₹10 lakh crore for housing and infrastructure Climate Resilience: Introduction of climate-resilient crops and new schemes Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

The India leg of the band’s ongoing Music of the Spheres Tour will spotlight accessibility < Back News, Disability, Neurodiversity Coldplay tours setting the Gold standard for disability inclusion The India leg of the band’s ongoing Music of the Spheres Tour will spotlight accessibility MMS Staff 22 Sept 2024 3-min read In thrilling news for Indian music fans, British rock band Coldplay has announced that their highly acclaimed Music of the Spheres World Tour will make a much-anticipated stop in Mumbai in 2025. This tour, which has been dazzling audiences across the globe since 2022 is more than just a concert — it’s a masterclass in inclusivity, setting a new standard for accessibility in live music. Coldplay’s Music of the Spheres World Tour isn’t just about performing hit songs; it’s about ensuring that every fan, regardless of their abilities, can fully enjoy the experience. And to that end, Coldplay has taken significant steps to make their shows accessible to everyone, redefining what it means to create an inclusive concert environment. Support for Deaf and Hard-of-Hearing fans Coldplay provides local sign language interpreters at their shows, allowing fans who are deaf or hard-of-hearing to engage with the music and lyrics in real time. Additionally, SubPacs — tactile audio systems that let users feel the vibrations of the music — are offered, ensuring the concert’s energy and rhythm can be physically experienced by those who may not be able to hear it. Neurodivergent-friendly Coldplay has partnered with KultureCity to provide sensory bags and mobile sensory refuge stations for fans with sensory sensitivities, helping them manage sensory overload during the concert. These thoughtful additions make the experience more comfortable and enjoyable for those who need a quieter, safer space. Touch tours for visually impaired fans To further enhance accessibility, Coldplay offers touch tours for guests who are visually impaired or have low vision, allowing them to engage with the concert’s elements in a tactile way. This thoughtful feature ensures that all fans, regardless of visual ability, can immerse themselves in the live experience. The band’s broader impact The band donates 10 percent of their profits from tours, record sales, and other ventures to various charitable causes, including ClientEarth, Global Citizen, The Ocean Cleanup, and One Tree Planted. Most recently, Coldplay has partnered with EarthPercent as a founding donor, amplifying their efforts to address pressing environmental challenges. Coldplay’s India return Coldplay’s return to India is a moment fans have been eagerly awaiting since their last performance at the Global Citizen Festival in Mumbai in 2016. That iconic show was a star-studded affair that aimed to promote global development goals, and it left a lasting impression on Indian audiences. Now, the band’s upcoming solo concert in Mumbai as part of the Music of the Spheres World Tour promises to build on that legacy, bringing their iconic hits like “Fix You,” “Yellow,” “A Sky Full of Stars,” and “Hymn for the Weekend” back to Indian shores. Fans are already buzzing with excitement. When Coldplay’s official page announced the news on Instagram, the comments section lit up with joy: “OH MY GOD IT’S HAPPENINGGGGG,” exclaimed one fan, while another wrote, “FINALLYYY YESSSSSSS!!! Our prayers have been heardddd.” As Coldplay prepares to light up Mumbai in 2025, their Music of the Spheres World Tour is more than just a series of concerts; it’s a movement that celebrates music’s power to unite and uplift, creating a space where everyone can feel the magic. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Heriberto Almonte, resident of Brooklyn, will assist officers with outreach & engagement efforts < Back Disability, News, Work NYPD swears in one of its first deaf interns Heriberto Almonte, resident of Brooklyn, will assist officers with outreach & engagement efforts MMS Staff 14 Jul 2024 1-min read The New York Police Department (NYPD) swore in one of its first deaf interns on Friday, June 12. Heriberto Almonte - a college student - will be assigned to NYPD Community Affairs, where he will be assisting with the development of an outreach and engagement plan for the deaf and hard of hearing community. Almonte will be tasked with helping officers understand what it’s like to interact with the D/ deaf community. A resident of Brooklyn, Almonte first came to the United States when he was 12. That was also when he learnt and started communicating in sign language. “If it wasn’t for the NYPD or the education that I received, I wouldn’t feel confident. I wouldn’t receive the knowledge that I have today,” Almonte signed at his swearing-in ceremony. Prior to moving to the United States, Almonte lived in the Dominican Republic where, he added, there were no schools that understood and accommodated his needs. Almonte’s internship lasts up to 13 weeks, post which Almonte plans to continue working with the d/ Deaf community. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

A neurodivergent Indian’s journey understanding chronic pain & finding community < Back Neurodiversity, Disability, Health Navigating the invisible: Living with autism and fibromyalgia A neurodivergent Indian’s journey understanding chronic pain & finding community Akshay CM 16 Jun 2024 7-min read The thing with chronic pain is that you never get used to it. It lingers in your mind and body like background music that refuses to stop playing. You start loving sleep a lot because it drowns out the pain; it is an escape, a few precious hours where you are not aware of your body. I remember talking to my manager last year. I had said that I wanted to lie down every two hours between work because of the intense back pain caused by fibromyalgia. I was asking for accommodations, a place to lie down for 10 minutes. They responded, "You can go lie down on the floor in the production room." To say that I felt humiliated would be an understatement. I felt deeply embarrassed for asking, as if my needs were unreasonable. I tried to respond back, but my voice got somewhere stuck in my throat. You gape at words. Meanwhile, the relentless back pain hits you even harder. I was diagnosed with fibromyalgia in 2015, during my second year of my Bachelor’s degree. At first, you are happy that you have a word to describe your pain, a label for your ordeals, a sigh of relief—I'm not alone in feeling this. You have the urge to find all the medicines, to go to countless orthopedics and specialists, to undergo all the tests. The white halls of hospitals become imprinted in your memory. Despite all the efforts, you still struggle to sit up straight. All the medicines you chug in desperation cause you immense stomach pain and headaches that never end. Then you get to know that there is no cure. The pain will last as long as I live. This realization sits as a dark cloud on your chest. You struggle to breathe, to be okay with this new reality. Every movement hurts. The thing with the spine is that it’s connected to almost all body parts — your hands and legs, your neck. Every time I move, it hurts. Every time I lie down, the pain doesn’t stop. People around you do not understand what’s going on. That’s the thing with having an invisible disability, you form a façade to navigate through daily life. From the outside, I might appear fine, even normal. But underneath that exterior, there’s a constant battle waging between my mind and body. Friends offer their support, but their inability to see the full extent of my struggles often leaves me feeling isolated. They see me laughing, participating in activities, and assume I’m doing well. They don’t see the immense effort it takes just to get out of bed, the planning involved in every single action to manage pain and sensory overload. It’s not their fault—they simply cannot see the invisible war I’m fighting. And then, almost two years ago, I realised I was autistic. This new understanding added another layer to my experience with fibromyalgia. Autism makes me highly sensitive to sensory input. Bright lights, loud sounds, and strong smells are annoying and painful. Fibromyalgia heightens this sensitivity. The chronic pain from fibromyalgia makes my already heightened senses feel even more acute. The slightest touch can feel like a sharp stab, a loud noise can send a shockwave through my body, and a bright light can feel like a physical assault. It's as if my body is constantly in a state of alert, bracing for the next wave of discomfort. Fatigue is another relentless companion. Social interactions, already exhausting due to autism, leave me completely drained. Fibromyalgia adds a layer of fatigue that never seems to lift. Even after a full night’s sleep, I wake up feeling as though I haven’t rested at all. This constant exhaustion affects every aspect of my life, making it difficult to function and engage in everyday activities. Last year, there were many days when I was unable to get up from bed. Fibromyalgia is a nightmare; you just let the pain visit you, take its time, and let it be there. The pain becomes a constant companion, one that never leaves, one that doesn't even allow you to forget it for a moment. Living with autism and fibromyalgia means that every day is an exercise in endurance. The cognitive fog, or "fibro fog," adds another layer of difficulty. Autism affects my executive functioning skills, making planning, organizing, and completing tasks challenging. Fibro fog compounds these issues, causing memory lapses and difficulty concentrating. Some days, even the simplest tasks feel monumental. Thes smallest of things like getting out of bed and brushing feels like a victory. The emotional toll is also significant. Being autistic, I struggle with identifying and expressing my emotions, a condition known as alexithymia. This makes it hard to articulate what I’m feeling or why, leading to misunderstandings and a sense of isolation. Depression and anxiety are constant shadows, exacerbated by the frustration of dealing with an invisible illness that others often don’t understand. Social interactions are very challenging. The fatigue and pain make it hard to maintain relationships. When I do manage to interact with others, my conditions often make me feel misunderstood. People can’t see my pain or sensory overload, so they don’t always understand why I might need to leave early or why I’m not as engaged. This leads to a sense of loneliness, as if I’m fighting these battles alone. Office spaces defeat me; I try to mask all day. By the time I come back to my room, I have no energy except to crash and sleep, waiting for the next day. Simple things like grocery shopping or attending a social gathering require immense effort and planning. The unpredictability of my conditions means I never know how I’ll feel from one moment to the next. Some days, I can manage a semblance of normalcy; other days, even getting dressed feels like an accomplishment. Living with both autism and fibromyalgia is like navigating a complex, ever-changing ground. Each day presents new challenges and obstacles. The interplay between sensory overload, chronic pain, cognitive fog, and emotional turmoil creates a unique and often overwhelming experience. And probably, the worst thing is you have no idea what’s going on with you. With this piece, my idea is not to rant. I just wanted to give a glimpse of countless people like me who have a hard time with their body, with their mind, and the world that refuses to accept and understand them. I end with no tips or takeaways; the only thing I want to say in the end is that understanding and empathy can go a long way in making our invisible battles just a little bit easier to bear. So when we ask for accommodations, when we ask you to sit with us, when we ask you to believe our lived experience, please listen to us. When we ask for that unexpected leave, know that it's not a sign of weakness or a lack of commitment. It’s a necessity, a crucial part of managing our health and well-being. When I request to work from home, it's not because I want to slack off, but because the environment of the office can sometimes be too overwhelming. The bright lights, constant noise, and social interactions can trigger sensory overload and exacerbate my pain. A quiet, controlled environment allows me to be more productive and less distracted by my symptoms. When I need to take frequent breaks or lie down, understand that it’s a way to manage the intense pain and fatigue that come with fibromyalgia. It’s not about wanting special treatment; it’s about being able to function at a basic level. So, when we ask for understanding, accommodations, or simply for someone to listen, please know that we are not asking for special favours. We are asking for the opportunity to live our lives as fully as possible, to contribute, to be included, and to not be defined solely by our conditions. Our requests are not unreasonable. We are asking for a chance. Thank you for listening :) “To be truly radical is to make hope possible rather than despair convincing.” Raymond Williams P.S. Here are some signs I found that might indicate fibromyalgia or chronic pain/fatigue: Persistent pain that affects multiple areas of the body. Feeling tired even after a full night's sleep and experiencing exhaustion after minimal physical activity. Experiencing memory lapses, difficulty concentrating, and feeling mentally foggy. Feeling pain from pressure or touch that wouldn't normally be painful. Trouble falling or staying asleep, or waking up feeling unrefreshed. Akshay CM (he/ they) is a queer-autistic and disabled Diversity, Equity, and Inclusion (DEI) professional and organizational sociologist. With a rich background in international marketing networks, fintech services, startups, and educational consultancies, Akshay has spent the last several years developing and implementing feminist DEI strategies, conducting cultural audits, and leading DEI trainings across multiple sectors. Follow Akshay CM on LinkedIn Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Empowering persons with disabilities through legal awareness < Back Right To Rights: Awareness to Action Empowering persons with disabilities through legal awareness The "Right to Rights" campaign was launched to mark World Disability Day 2022 , aiming to bridge the gap between the existing legal framework and the actual awareness and implementation of disability rights in India. Despite the enactment of the Rights of Persons with Disabilities (RPwD) Act, 2016, many disabled individuals and the general population remain unaware of the rights and provisions stipulated in the Act. The campaign sought to educate, advocate for, and enable persons with disabilities to know their rights and have agency in their lives. Data & insights: secondary research, culture sweep, and social listening: Few states have fully implemented the RPwD Act, 2016 with many lagging in notifying state rules and taking necessary actions Government websites and online services often do not comply with accessibility standards, hindering access to essential services The mandated 4% reservation in government jobs for persons with disabilities is inconsistently implemented, with many posts remaining unfilled Employed individuals with disabilities face inadequate workplace accommodations, impacting productivity and inclusion Many educational institutions lack necessary infrastructure like ramps, accessible toilets, and learning materials There is a significant shortage of trained special educators Access to specialized healthcare is limited, especially in rural areas, with a shortage of medical professionals and rehabilitation services Healthcare facilities often lack accessibility, and healthcare professionals are not adequately trained to meet the needs of persons with disabilities There is a general lack of awareness about the RPwD Act among the public and officials, leading to poor enforcement Obtaining justice and enforcement of rights is slow, delaying the provision of benefits and services Comprehensive data on persons with disabilities is lacking, hampering effective policy-making and monitoring Inadequate mechanisms for monitoring and evaluating the Act's implementation result in inconsistencies across states Our Approach: Our approach centered on leveraging multi-format and cross-platform content to reach a diverse audience, including policymakers, educators, employers, and the general public. We aimed to have data-driven stories lead the way in highlighting the gaps in the implementation of disability rights, and advocating for better awareness and enforcement of the law through informative and engaging content. Campaign objectives & goals: To educate persons with disabilities and the general population about the rights of disabled people as listed down under the RPwD Act, 2016 To start an ongoing campaign advocating for the proper implementation of disability rights To enable persons with disabilities to assert their rights and seek the necessary accommodations Challenges: Lack of awareness about disability rights among the general population and officials Inconsistent implementation of the RPwD Act across states Limited accessibility of online content and services Solutions devised: Target Audience: policymakers, educators, employers, government officials, and the general Indian public Narrative: focusing on personal stories and topics obtained through data-driven insights, and expert opinions to highlight the importance of disability rights and the gaps in their implementation Topicality: addressing key areas such as education, employment, accessibility, and sexual and reproductive health rights (SRHR) of persons with disabilities Deliverables: 6 x social media posts 5 x social media reels Platforms: LinkedIn: to speak to professionals and policymakers Instagram and Facebook: to speak to a broad audience Length: The campaign ran for one month leading up to and following World Disability Day, 2022. Content was posted daily to maintain engagement and momentum. Impact: Views: 2 million+ views across platforms (with one reel crossing 1.3 million views, 3000+ shares and 250+ comments) Reach: 4 million+ Shares: 10k+ Engagement: Overwhelmingly positive comments, indicating a deep understanding and empathy towards the highlighted topics Virality: a reel on SRHR for women with disabilities went viral, significantly amplifying the campaign's reach Conclusion & learnings: Successfully raised awareness about disability rights and the RPwD Act, with a combined reach of 4 million+, enhancing public understanding and engagement through strategic content dissemination Multi-format, cross-platform strategies are effective in reaching diverse audiences and generating traction to impactful conversations Way Forward: Continue to create and share content that educates and advocates for disability rights, working with policymakers to ensure the full implementation of the RPwD Act across all states Fostering a community of advocates and allies who can support ongoing and future initiatives WhatsApp Facebook X (Twitter) LinkedIn Copy link Much much relate? 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