top of page

Search Results

140 results found with an empty search

  • Much Much Spectrum | SC issues landmark guidelines for disability representation in films

    New guidelines aim to end stereotypes and promote accurate portrayals of disabilities in media < Back Disability, Media, News SC issues landmark guidelines for disability representation in films New guidelines aim to end stereotypes and promote accurate portrayals of disabilities in media MMS Staff 8 Jul 2024 4-min read One of the foundational pillars of an affirming attitude towards disability and neurodivergence is good media representation. Until the depiction of disabled and neurodivergent people in our films, TV series and social media is accurate, respectful, and empathetic, not much in society's attitude towards this community can change. Looks like the Supreme Court has taken note. In a landmark ruling on July 8, a Supreme Court bench headed by Chief Justice of India DY Chandrachud established comprehensive guidelines to prevent stereotyping and discrimination of persons with disabilities (PwDs) in visual media, including films and documentaries. The petition, filed by disability rights activist Nipun Malhotra, was driven by concerns over derogatory and discriminatory remarks towards PwDs in the film ‘Aankh Micholi.' The film included terms like “ atki hui cassettes ” (stuck cassettes) and “ bhulakkad baap ” (forgetful father) to describe individuals with speech and memory disabilities. ‘Aankh Micholi,’ released in 2023 to largely unfavourable reviews , is a film about a family whose various members live with disabilities and health conditions, including deafness, stammering and night blindness. The plot is an ableist ‘comedy of errors’ that rests on using disability and neurodivergence as elements of comic relief. Unfortunately, what a lot of filmmakers fail to realise is not only is the disabled community a low hanging fruit for comedy and all other kinds of slapstick content that shows them in bad light for a cheap laugh, their improper representation gives rise to society's developing misgivings about the community’s actual potential. The Supreme Court rightly emphasised that creators must provide an accurate representation of disabilities rather than mocking or mythifying them. Justice JB Pardiwala, part of the bench, described the judgment as "path-breaking," denouncing the use of stigmatising terms like “cripple” and “spastic.” Historical context and the need for change Indian films, TV serials, ads, and news media have long used disabilities and neurodivergent conditions as a source of comic relief, often at the expense of the dignity of persons with disabilities and neurodivergent conditions. Characters with disabilities have been frequently depicted in a manner that elicits pity or frames them as overtly inspirational, contributing to a skewed and harmful portrayal of disability. This stereotypical representation reinforces negative perceptions and stigmatisation, marginalising an already vulnerable group. The Supreme Court's latest judgement Chief Justice Chandrachud, authoring the judgement, drew attention to the harmful myths perpetuated by visual media about disabilities. The Court noted that depicting persons with disabilities as “super-cripples” implies that they must possess extraordinary abilities, thereby marginalising those who do not fit this stereotype. The bench stated, “Stereotyping is an antithesis to dignity and non-discrimination,” highlighting the judiciary’s evolving role in safeguarding individual rights and addressing complex intersections of disability, gender, and mental health. Modern social model vs the medical model The judgement emphasised a shift from the medical model, which views disability as a personal tragedy, to the modern social model. The social model treats disabilities as a result of societal barriers rather than individual deficits. Chief Justice Chandrachud highlighted that stereotypes and a mockery of disabilities arise from a lack of familiarity and inadequate representation of persons with disabilities in mainstream discourse. Distinguishing humour types and their impact The Court made a critical distinction between “disabling humour” and “disability humour.” Disabling humour demeans persons with disabilities, while disability humour seeks to better understand and explain disability. The context, intention, and overall message of media content should be considered before concluding whether remarks are disparaging. Guidelines for inclusive representation The Supreme Court issued several guidelines for creators of films and visual media content: Language and terminology: Insensitive language is contrary to the dignity of persons with disabilities. Terms like “cripple” and “spastic” should be avoided, as should terms like “afflicted,” “suffering,” and “victim.” These terms contribute to negative self-image and societal marginalisation. Accurate representation: Creators must strive for accurate representation of medical conditions to prevent misinformation and perpetuation of stereotypes. Misleading portrayals can reinforce harmful misconceptions about disabilities. Diverse realities: Visual media should depict the diverse realities of persons with disabilities, showcasing not only their challenges but also their successes, talents, and contributions to society. This holistic portrayal helps to normalise disability and reduce stigma. Stakeholder involvement: The bench emphasised the importance of disabled participation in the creation of media, stating, “‘Nothing about us without us’ principle is based on the promotion of participation of persons with disabilities and equalisation of opportunities. This principle must be practised in constituting statutory committees and inviting expert opinions for assessing the overall message of films and their impact on the dignity of individuals under the Cinematograph Act and Rules.” The Court went on to remind the government of its obligations under the Convention on the Rights of Persons with Disabilities to incorporate the lived experiences of disabled individuals. In March, the Supreme Court had requested the Central government's response to a plea filed by disability rights activist Nipun Malhotra in the same matter. Malhotra's complaint was that the film and its trailer contained derogatory references to persons with disabilities (PwDs). The issue escalated to the Supreme Court after the Delhi High Court dismissed Malhotra's plea, stating that excessive censorship should be avoided. The Supreme Court's ruling marks a significant step towards dismantling harmful stereotypes and promoting inclusive representation of disabilities in visual media. It now remains to be seen just how many producers, directors, screenwriters and social media creators adhere to these guidelines. If you’re any of the above and unsure where or how to begin, consider engaging with disability advocacy groups that can provide insights about disabled lived experiences. A lot of nonprofits and independent self-advocates conduct training and sensitisation programs, which could potentially give insights into the community’s realities. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | Celebrating World Vitiligo Day: Stories of Indian creators with Vitiligo

    The rise of Vitiligo representation in media is smashing conventional beauty standards < Back Health, Gender, News Celebrating World Vitiligo Day: Stories of Indian creators with Vitiligo The rise of Vitiligo representation in media is smashing conventional beauty standards MMS Staff 25 Jun 2024 4-min read Millions of people worldwide live with Vitiligo, a condition characterised by the loss of skin pigment. This condition causes the skin to turn white or appear lighter than one's natural skin tone due to the destruction of melanocytes, the cells that produce melanin. On World Vitiligo Day, we celebrate the stories of creators with vitiligo who use their platforms to spread awareness and promote self-love, showing the world that beauty comes in all forms. But before that, a quick fact. According to this study done by the National Institutes of Health (NIH), the prevalence of vitiligo in India ranges from 0.25% to 4% among dermatology outpatients, with higher rates reported in certain regions like Gujarat and Rajasthan, reaching up to 8.8%. Despite this, there remains a significant lack of awareness and representation, leading to social stigma and psychological challenges for those with the condition. Many people with vitiligo face ostracization, bullying, and severe social and psychological impacts, particularly young women who are pressured to meet conventional beauty standards. However, representation and inclusivity in the media and fashion industries are slowly beginning to change perceptions. In recent years, the media has begun to embrace a more inclusive and diverse representation of beauty, prominently featuring individuals with vitiligo. This shift marks a significant departure from the past, where vitiligo was often stigmatised and misunderstood. Influencers like Winnie Harlow have played a crucial role in this transformation, using their platforms to challenge conventional beauty standards and inspire others. Harlow's rise to fame as a model with vitiligo has opened doors for many others, showcasing the unique beauty and resilience of those with this skin condition. Television shows, fashion campaigns, and social media platforms are now more frequently highlighting the stories and experiences of individuals with vitiligo. This increased visibility helps to normalise the condition and educate the public, paving the way for more acceptance and understanding. Campaigns by major brands, such as the inclusive beauty initiatives by Dove and CoverGirl , have also contributed to this positive trend by featuring models with vitiligo in their advertisements. But despite these advancements, there is still a long way to go. Continued efforts to amplify the voices of people with vitiligo in the media are essential for dismantling stereotypes and promoting a broader definition of beauty. By celebrating diversity and advocating for inclusivity, the media can play a powerful role in changing perceptions and supporting those with vitiligo to live their lives without fear of discrimination or prejudice. Here are the stories of six remarkable Indian creators who are redefining beauty standards and breaking down the stigma associated with vitiligo. Mamta Mohandas The last decade has been incredibly challenging for South Indian actress Mamta Mohandas , as she battled Hodgkin’s lymphoma, a type of cancer. True to her style, when she shared her journey with vitiligo, it was with a poetic and hopeful tone that embraced her condition. In a selfie shared with her two million followers, she wrote, “Dear sun, I embrace you now like I have never before. So spotted, I’m losing color… I rise even before you every morning, to see you glimmer your first ray through the haze. Give me all you’ve got for I will be indebted, here on out and forever by your grace.” Aastha Shah Aastha Shah is a Mumbai-based content creator who has captivated audiences with her empowering messages of self-acceptance. Diagnosed with vitiligo at 8, Aastha faced many challenges, including societal judgement and a difficult medical journey. “For years, I struggled with feeling beautiful because of my vitiligo. Today, I walked the red carpet at Cannes, not in spite of my vitiligo but because of it. I want to show everyone that beauty comes in all shades and patterns,” says Aastha. She boasts a following of one million on social media, where she shares her journey and motivates others. Aastha recently made history as the first Indian with vitiligo to walk the red carpet at the 77th Cannes Film Festival. Prarthana Jagan Prarthana Jagan , a model and social media influencer based in Bangalore, developed vitiligo at the age of 11. She faced severe bullying and social isolation due to her condition, which greatly affected her self-confidence. Prarthana wore makeup to conceal her vitiligo for many years until a life-changing surgery in 2016 helped her embrace her natural skin. “I stepped out bare-skinned into the sunlight and I just can’t express what I felt on that day. I felt sunlight on my bare skin after years. It was just a moment of self-reflection,” Prarthana recalls in a post on her Instagram. Prarthana now shares her story on Instagram and YouTube, inspiring others to embrace their unique appearances. She has modelled for Elle and Grazia and works with Blunt Model Agency, continuing to raise awareness about vitiligo. Jasroop Kaur Singh Jasroop Kaur Singh , a London-based British-Indian model and influencer, creatively expresses her journey with vitiligo through her artwork. Jasroop combines her passion for art with advocacy, creating pieces that highlight the beauty of vitiligo. Despite facing bullying and social isolation growing up, she found confidence in herself and has worked with Vogue, Burberry, and other high-end fashion brands. Kirpal Bhogal Kirpal Bhogal is a London-based content creator and advocate for vitiligo awareness. Known for his vibrant personality and stylish content, Kirpal uses his social media presence to educate others about vitiligo and promote inclusivity. His efforts have garnered a supportive community that celebrates individuality and encourages open conversations about skin conditions. Ranjani Ramakrishnan Based in Chennai, India, Ranjani Ramakrishnan is a motivational speaker and digital creator who has been very vocal about her journey with vitiligo. Diagnosed at age 11, Ranjani struggled with self-acceptance but came to embrace her unique appearance. She now works with brands promoting inclusivity and models for Another Life Collective . Shantanu Gosavi Shantanu Gosavi , an Ahmedabad-based model and influencer, uses his platform to challenge stereotypes about vitiligo. A graduate in Textile Design from NIFT Gandhinagar, Gujarat, Gosavi is trained in Kathak and works as a freelance textile designer, photographer and model. He began his modelling journey with local brands, and now collaborates with photographers and fashion brands. The stories of these creators serve as a reminder that beauty is diverse and multifaceted. On World Vitiligo Day, we celebrate their stories and dedication to spreading awareness and representation. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | Actor John Leguizamo urges TV Academy for inclusive representation

    The Super Mario Bros actor in an open letter has urged for diverse representation at the Emmys < Back News Actor John Leguizamo urges TV Academy for inclusive representation The Super Mario Bros actor in an open letter has urged for diverse representation at the Emmys MMS Staff 12 Jun 2024 2-min read Emmy-winning actor John Leguizamo has issued an appeal to the Television Academy through an open letter published in The New York Times, urging for increased representation of diverse talents at the Primetime Emmy Awards. As the organisation behind the revered Primetime Emmy Awards, the Academy has a pivotal role to play in shaping perceptions of inclusivity and representation in media. Leguizamo, not one to shy away from advocacy, leveraged not only the printed word but also the digital sphere to amplify his call. Sharing images of the letter on social media, he tagged his contemporaries including Whoopi Goldberg, Anya Taylor-Joy, Missy Elliott, and George Takei as well as streaming platform Netflix in a bid to garner wide-reaching support. Highlighting discrepancies In his social media post accompanying the letter, Leguizamo points out a stark disparity: “White people are only 58.9% of the population but overrepresented in top positions across the board.” He notes the disproportionate influence this group holds in critical sectors such as technology, banking, and entertainment, underscoring his argument with the need for an industry that reflects the true demographic makeup of the country. “America is better when it is inclusive. It is more profitable. It is more creative!” he states. Challenging the status quo In his letter, Leguizamo urges the entertainment industry to move beyond superficial commitments to diversity and inclusivity. He writes, “Dear Hollywood, please let this be the year we finally embrace change. The year we truly find equity and see artists of colour represented across not just one category but ALL categories.” He critiques the industry's reluctance to translate the rhetoric of diversity into real action, highlighting the excellence of hundreds of artists of colour who are often overlooked due to systemic biases. An opportunity for real change The timing of Leguizamo’s letter aligns with the upcoming 76th Primetime Emmy Awards scheduled to air September 15 on ABC. This also gives an opportunity for the Television Academy to respond to the growing demands for equity and representation. Inspiring future generations Leguizamo concludes his letter with a forward-looking message, hoping to inspire future generations of minority and underrepresented artists and imagining a world where these artists can see themselves reflected on the Emmy stage: “If they can, maybe I can, too.” For now, all eyes are on the Academy to see how it responds to Leguizamo's call for change. His efforts have the potential to catalyse a significant shift in how talent is recognised and celebrated, paving the way for a media environment that reflects its diverse audience. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | बच्चे को ऑटिज़म के बारे में बताएँ या नहीं? - Disclosing my child’s autism

    क्या बच्चों को उनके ऑटिज़म के बारे बताना ठीक है? (विडियो की यूट्यूब लिंक के साथ) < Back Neurodiversity, Hindi, Parenting बच्चे को ऑटिज़म के बारे में बताएँ या नहीं? - Disclosing my child’s autism क्या बच्चों को उनके ऑटिज़म के बारे बताना ठीक है? (विडियो की यूट्यूब लिंक के साथ) MMS Staff 22 Jul 2024 3-min read अक्सर जब बच्चों का ऑटिज़म, डिस्लेक्सिया या किसी अन्य स्थिति के साथ निदान होता है, तो माता-पिता उन्हें उनके निदान के बारे में बताने से हिचकिचाते हैं। यह सवाल अक्सर उठता है कि क्या बच्चों को उनकी स्थिति के बारे में जानकारी देना सही होगा या नहीं। निदान के महत्व को समझना बच्चों को उनके निदान के बारे में बताने से पहले, यह समझना जरूरी है कि निदान के बारे में जानकारी क्यों महत्वपूर्ण है। जब बच्चे अपनी स्थिति के बारे में जानते हैं, तो वे अपनी चुनौतियों और क्षमताओं को बेहतर समझ सकते हैं। यह समझ उन्हें आत्मविश्वास और आत्म-स्वीकृति में वृद्धि देती है। व्यक्तिगत अनुभव और सामुदायिक उदाहरण हाल के वर्षों में कई ऐसे उदाहरण सामने आए हैं जहां लोगों ने देर से निदान होने के बाद अपने जीवन में महत्वपूर्ण बदलाव देखे हैं। अदिति गंगराड़े (मच मच मीडिया की फ़ाउंडर) बताती हैं कि उन्हें 24 साल की उम्र में ऑटिज़म और ADHD के बारे में पता चला। इससे पहले वे हमेशा यह सोचती थी कि वे बाकी लोगों से अलग क्यों हैं और चीजें सामान्य तरीके से क्यों नहीं कर पाती। निदान के बाद उन्हें अपने सवालों के जवाब मिले और उन्होंने खुद को समझने और स्वीकारने का नया रास्ता अपनाया। देरी से निदान के नकारात्मक प्रभाव कई लोगों के अनुभवों से यह भी पता चलता है कि अगर उन्हें पहले अपने निदान के बारे में पता होता, तो वे अपने जीवन में बेहतर निर्णय ले पाते। देर से निदान के कारण कई बार बच्चों को उनकी परिस्थितियों से निपटने के लिए आवश्यक समर्थन और संसाधन नहीं मिल पाते। जागरूकता की कमी और सामाजिक चुनौतियाँ दूसरी ओर, यह भी सच है कि ऑटिज़म और ADHD जैसी स्थितियों के बारे में जागरूकता और समझ बहुत कम है। जिन लोगों को अपने ऑटिज़म के बारे में पहले पता चला, उन्हें समाज के नकारात्मक व्यवहार और सीमित सोच का सामना करना पड़ा। माता-पिता अक्सर अपने बच्चों को उनकी विकलांगता के बारे में न बताने का निर्णय इस डर से लेते हैं कि लोग उनके बच्चे के प्रति बुरा व्यवहार कर सकते हैं। निदान के बारे में बताने के लाभ हालांकि, ऑटिज़म, ADHD, या किसी भी neurodivergent स्थिति में होना कोई बुरी बात नहीं है। यह सच है कि इन स्थितियों के साथ चुनौतियाँ आती हैं, लेकिन बच्चों को उनकी स्थिति के बारे में न बताने पर भी ये चुनौतियाँ बनी रहती हैं। इसके विपरीत, अगर बच्चे अपनी स्थिति के बारे में जानते हैं, तो वे इन चुनौतियों से निपटने के लिए बेहतर तरीके से तैयार हो सकते हैं। सही समय और तरीका बच्चों को उनके निदान के बारे में बताने का सही समय और तरीका महत्वपूर्ण है। इस निर्णय को लेने से पहले माता-पिता को पेशेवरों से सलाह लेनी चाहिए, जैसे कि विकासात्मक बाल विशेषज्ञ, अन्य माता-पिता जिनके बच्चे ऑटिस्टिक हैं, या ऑटिस्टिक वयस्क। इन सभी लोगों से परामर्श लेने के बाद ही निर्णय लेना चाहिए। जब माता-पिता को लगे कि समय और परिस्थिति सही है, तो यह निर्णय लेना फायदेमंद हो सकता है। इससे बच्चों को उनके जीवन में स्पष्टता मिलेगी और वे अपनी पहचान को बेहतर ढंग से समझ पाएंगे। हालांकि, दूसरों को बताने का फैसला बच्चों पर निर्भर करेगा कि वे अपनी स्थिति को साझा करना चाहते हैं या नहीं। समर्थन और मार्गदर्शन दोनों ही स्थितियों में, माता-पिता को अपने बच्चों के साथ खड़ा रहना होगा। यह सुनिश्चित करना जरूरी है कि बच्चे को हर स्थिति में उनका समर्थन और मार्गदर्शन मिले। अंत में, बच्चों को उनकी स्थिति के बारे में बताने का निर्णय एक संवेदनशील और महत्वपूर्ण निर्णय है। इससे बच्चों को आत्म-स्वीकृति और आत्मविश्वास मिलता है और वे अपनी चुनौतियों का सामना करने में सक्षम होते हैं। अगले कदम अगर माता-पिता यह निर्णय ले चुके हैं कि वे अपने बच्चे को उनके ऑटिज़म या अन्य neurodivergence के बारे में बताना चाहते हैं, तो उन्हें यह भी जानना चाहिए कि इस बारे में बात करते वक्त किन चीजों का ख्याल रखना चाहिए। हमारे अगले यूट्यूब विडीओ में हम इस पर चर्चा करेंगे कि बच्चों को उनकी स्थिति के बारे में किस तरह से बताया जा सकता है और इस बातचीत को कैसे संवेदनशील और प्रभावी बनाया जा सकता है। यह लेख को आप विडीओ के रूप में देख सकते हैं: Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | Down syndrome actor-activist to be first disabled guest editor at UN News

    Nick Herd from Canada to make history at landmark disability conference COSP17 in New York < Back Disability, News Down syndrome actor-activist to be first disabled guest editor at UN News Nick Herd from Canada to make history at landmark disability conference COSP17 in New York MMS Staff 10 Jun 2024 2-min read Global disability advocate Nick Herd is set to make history as the first-ever guest editor for UN News. This development comes as the world convenes for the 17th session of the Conference of States Parties (COSP17) to the Convention on the Rights of Persons with Disabilities (CRPD) in New York over June 11th, 12th and 13th. Herd, a passionate advocate for disability rights, said he is excited to use his platform to amplify the voices of people with disabilities around the world, in this story published on the UN News portal yesterday. This year's COSP17 focuses on critical themes including jobs, technology, and humanitarian responses in times of crisis, all viewed through the lens of disability inclusion. "I'm most looking forward to connecting with others and meeting people who care about the same things I do," Herd said, highlighting the importance of accessibility and inclusion, throwing back to how discussions at last year's COSP emphasised making things easier for people with disabilities. Herd, a member of the L'Arche community in Toronto - which “(works) with others to build a world where everyone belongs” - says: "Technology plays a crucial role in enhancing my life… from social media to communication apps, it lets me connect, communicate and comprehend information more easily." Herd also shared personal stories about how his work as a creative director, actor, and artist has been enriched by technology. Discussions at COSP17 will tackle significant challenges faced by people with disabilities, exploring issues such as how to overcome barriers to employment, ensure access to essential services during crises, and leverage technology for inclusion. Herd, whose animated film "Freebird" was long-listed for the 94th Academy Award, talks about how people with disabilities can excel in the workplace, stressing the importance of inclusion, collaboration, and self-expression in the job market. He highlights the vulnerability of people with disabilities in conflict zones, drawing from his experience with L'Arche communities in areas like Haiti and Ukraine. "Living a dignified life means having all the rights that make us human," Herd said. Encouraging everyone to join the conversation at COSP17, Herd added: “Let's work together to make sure everyone has the rights and opportunities we deserve. Tune in to the UN News live blog on Tuesday, June 11th, at 8 am to follow Herd's coverage. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | 34 years of the ADA: Celebrating a milestone in disability rights

    How the ADA has improved lives for disabled folx, and the challenges faced in enforcing this law < Back Disability, Neurodiversity, News 34 years of the ADA: Celebrating a milestone in disability rights How the ADA has improved lives for disabled folx, and the challenges faced in enforcing this law MMS Staff 25 Jul 2024 4-min read The Americans with Disabilities Act (ADA) was passed July 26, 1990, marking a significant milestone in the fight for civil rights for people with disabilities. This landmark legislation protects individuals with visible and invisible disabilities from discrimination, ensuring they have equal rights and opportunities. The journey to the ADA One of the critical issues with disability-related acts is that while they aim to cover all disabilities and address various challenges faced by disabled individuals, the enforcement of these laws often depends on individual litigation. Simply put, unless someone files a case, courts are not obligated to mandate accessibility measures. This means the implementation of the law is not actively overseen unless people fight for their rights, which can be both time-consuming and expensive — an effort many disabled individuals cannot afford. The historic significance of the ADA Despite these challenges, the ADA remains a historical piece of legislation. An entire community came together to advocate for the passage of the ADA, culminating in a powerful demonstration known as the “Capitol Crawl.” Activists gathered at the Capitol Building in Washington, DC, and crawled up the steps to highlight the need for accessibility and inclusion. This act of reclaiming space became a pivotal moment in disability rights history. US Senator Tom Harkin, the author of the final bill, delivered his speech to the Senate in sign language, ensuring it was accessible to his deaf brother and highlighting the importance of inclusivity. President George HW Bush signed the bill into law, declaring, “Let the shameful wall of exclusion finally come tumbling down.” The impact of the ADA Thirty-four years later, the ADA has made several essential accessibility measures mandatory. Some disabled individuals express gratitude for the ADA's mandates, which include: Disabled parking lots Ramps Wheelchair seating in cinema halls Better access to employment and education These changes have significantly improved the lives of many, but there is still much work to be done. The ADA's reliance on individual litigation for enforcement means that not all aspects of the law are uniformly implemented. Advocacy and awareness remain crucial to ensuring the continued progress of disability rights. “Yes, things are better with the A.D.A. We have elevators, ramps and closed captioning. But the ADA is not a magic wand. (It) can only do so much to correct inequalities in a society that is uncomfortable with disability,” said disability rights activist Alice Wong in this story in the NYT. The ADA explained The ADA prohibits discrimination against people with disabilities in several areas, including employment, transportation, public accommodations, communications and access to state and local government programs and services. As it relates to employment, Title I of the ADA protects the rights of both employees and job seekers. While the US Department of Labor's (DOL) Office of Disability Employment Policy (ODEP) does not enforce the ADA, it does offer publications and other technical assistance on the basic requirements of the law, including covered employers’ obligation to provide reasonable accommodations to qualified job applicants and employees with disabilities. The ADA applies to all private businesses with 15 or more employees. It also covers government employers, employment agencies, and labour unions. The ADA also had the effect of increasing accessibility and mobility for people with disabilities by mandating automatic doorways, ramps, and elevators to accommodate wheelchairs in public places and businesses. Title I of the law prohibits discrimination against qualified individuals with disabilities during job application procedures, hiring, firing, the pursuit of career advancement, compensation, job training, and other aspects of employment. Title II applies to state and local government entities. This part of the law further extends the protection from discrimination to qualified individuals with disabilities. It requires that these individuals have reasonable access to services, programs, and activities provided by the government. Title III prohibits discrimination against people with disabilities regarding access to activities at public venues. This includes businesses that are generally open to the public, such as restaurants, schools, daycare facilities, movie theatres, recreation facilities, and doctors’ offices. Title IV oversees telephone and television access for individuals with hearing and speech disabilities. Common carriers, such as telephone companies, are required to establish interstate and intrastate telecommunications relay services (TRS) 24 hours a day, seven days a week. Looking forward While the ADA has laid a strong foundation, there is always room for improvement. It's essential to continue the conversation about disability rights and push for further advancements in accessibility and inclusivity. How has the ADA made things better for you or someone with a disability you know? Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | 7 tips for reinventing your career after your neurodivergence discovery

    From unmasking at work to exploring new passions, here's how to navigate your new path < Back Neurodiversity, Work, Education 7 tips for reinventing your career after your neurodivergence discovery From unmasking at work to exploring new passions, here's how to navigate your new path MMS Staff 1 Aug 2024 5-min read So you were young, you fell in love with your idea of a career path or job, you pursued it, got placed at a company. And then it happened - you got an answer to a lot of your life’s questions with a late diagnosis or discovery, finding out you’re neurodivergent: ADHD, dyslexia, dyscalculia, autism... or any of these conditions. And now, you want to unmask. You keep replaying your life thus far in your head, and you feel like you’d much rather do something else, be somewhere else, and be so much better at it too. Most late diagnosed/ discovered folx have been here - thinking their chosen job or career is something they want until the discovery/ diagnosis happens, and then suddenly they’re in the woods. Fortunately, there are some things you might want to consider if you’re in the same boat. Unmask at your current workplace - slowly, safely Let’s get this straight right up front - unmasking is difficult. And totally not recommended if you’re in a place where you might get taken advantage of. With that said, it is also one of the few ways to let your peers and co-workers know about the challenges you’re having. If you think you can speak to your boss about this, and they’ll understand, maybe that’s something to consider? It won’t make the job feel less boring, but accommodations and support can surely go a long way in making things bearable until you’re able to find something more suited to your needs. Shift to a more suitable job within your organisation Picking up where point one left off, if it’s the role you truly despise, and your boss or upper management understands your situation, maybe shifting to a different role within the same organisation might be something to consider. A lot of people, especially those with customer-facing roles find they’re actually not so suited for those roles once they start doing them. Ask to be shifted to a department where the work is more suited to your talents. Upskill A lot of companies, including Google, IBM and Meta, offer online courses that you can take to learn a new skill. Certificate courses can be taken part time at a flexible schedule, which you can figure out based on your current workload, and they’re relatively inexpensive as well. Once you have a certificate in a skill that’s in demand, apply for new jobs. Sure you’ll have to begin as a fresher, but it will be worth it in the long run if you truly have a passion for it. Go back to college If you feel like a simple certificate course won’t cut it, and that you need to learn the fundamentals all over again, it’s never too late to consider going back to college. This is a path a lot of people have taken well into their 50s and 60s, and if it’s something you’re sure about, the plunge will be worth it. The flipside - college is expensive and a lot of people aren’t able to afford it. But there’s always scholarships and grants that you can apply for. Explore flexible work options Figure out what about the job or career doesn’t feel right. If it’s the long hours, see if your workplace is able to offer you a flexible schedule. If it’s the social aspect, figure out if socialising is something you can limit to only certain days or hours a week. If it’s a long commute, explore WFH or hybrid formats of work. It’s important to know which aspect of the job seems cumbersome and unsustainable for you in the long run so you don’t wind up in the same boat over and over again. Experiment with side projects or part-time work If work overall doesn’t feel good, and you can afford some time off, pick up that side project that you always wanted to but never could. See if that could turn into a paid opportunity. With so many businesses relying on the internet and social media, you’ll be surprised what people will pay for. Or, for the time being, while you figure things out, you could take up a part time gig just to pay the bills. The extra headspace always helps put things in perspective! Consider freelancing or entrepreneurship And if working in a corporate or an office environment at your desk for 9 hours a day every day just doesn’t feel so good anymore, you might want to consider a freelance career. Lots of specialists offer their time to companies as a ‘fractional’ consultant, which means they work that same role with multiple companies. While the work might still be hectic, at least you’re your own boss and you'll be able to work by your hours. Another path to consider is entrepreneurship. And while running your own shop might have many downsides (and wayyyy more stress!), if aspects such as innovation, improvisation, and leadership come to you naturally, you’ll excel at it. Whichever of these paths you wind up taking, remember that it’s important to focus on your strengths. You will need to learn to advocate for yourself politely and assertively, and while it may seem like a drag to try and be social, networking within different communities really helps give perspective (and also, who knows, job opportunities in a field you like!). Join WhatsApp and Telegram groups started for neurodivergent folx by neurodivergent folx, and don’t be afraid or shy to ask for help from people there. It’s easy to blame yourself when things aren’t going right, but this is probably when it’s most important to actively practise self-compassion. Keep telling yourself that no time is ‘too late’ to have had a diagnosis or discovery, and that you can still pursue what you really like, what suits you, and pays you well. Finally - use social networks like LinkedIn and Indeed to keep yourself up-to-date on the job market in your field of interest. Follow companies you want to work with, and learn how to build a solid resume that highlights your strengths. And, if through this journey you see your mental health taking a toll, don‘t beat yourself up over it. Instead, consider therapy. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | If you’re thinking of disclosing your autism, read this first

    The global autistic community shares the good and bad sides of autism disclosure < Back Neurodiversity, Community If you’re thinking of disclosing your autism, read this first The global autistic community shares the good and bad sides of autism disclosure MMS Staff 5 Jul 2024 5-min read An autism disclosure can be freeing. But, undoubtedly, it's also often a delicate and challenging process for many autistic individuals. Despite increasing awareness and understanding of autism, the responses that autistic people receive when they share their diagnosis can range from dismissive and ignorant to outright ableist. Our recent #MuchMuchSays session - where we ask our community questions related to topics that pertain to our everyday lives - with the autistic community highlighted the varied and often painful reactions that autistic individuals face when they disclose their autism. Common responses to Autism disclosure One of the most common and frustrating responses reported was a dismissive or reaction of disbelief. Many people shared experiences of being told they don't “look” autistic or that there's no way they could be autistic: You look normal - @1232343_ You don't look autistic to me is usually the first thing I get. - @yagamilight3000 These comments reflect a fundamental misunderstanding of autism, reducing it to a set of visible traits. Silence and dismissal Equally hurtful is the silence or abrupt change in subject that some individuals face after disclosing their autism: Nothing. Silence. No questions. Nothing said. Maybe some generic normative statements. Changing the subject. That’s the saddest. Then autie brain can’t even understand if the other person is interested in knowing more or being more supportive or is it that typical way of going quiet to dismiss something out of the conversation (this way is of course taken from that super cryptic rules and regulations book of neuronormativity which no neurodivergent has been able to fully decipher yet). - @adwaita.das Silence from the two friends closest to me. It broke my heart 😔 - @sara.untangled Usually something dismissive like, ‘only a little though right (assuming spectrum is a left to right-low to high)’ and then, ‘oh we all struggle with those things’… - @cotey72 This lack of engagement can be deeply isolating, leaving autistic individuals feeling unsupported and marginalised. Ignorant and hurtful questions Some responses are more overtly offensive or ignorant, questioning the legitimacy of the diagnosis or making inappropriate assumptions. Worst response: who assessed you? There’s no way you are autistic. - @carotomes I get a “Oh! I’m sorry!” Or “Sooo, self diagnosed huh?” - @twistedlavenderbud I’ve gotten questions like “you must be really high functioning then, right?” Because they can’t believe I have a job and am able to socialize with them. - @livloudesu A judge told me I seemed cognitive. Yeah thanks judge it's called masking. - @catehernandez88 “I think we are all a bit autistic aren't we?” - @willowthewisp1 These reactions not only invalidate the individual's experience but also undermine their credibility and self-awareness. Ableist microaggressions Ableism often manifests in the form of microaggressions — subtle, often unintentional, discriminatory comments or behaviours. Some community members shared their experiences with these types of responses: "Are you actually diagnosed?" But most of the time people don't ASK anything, they TELL. "You're really high functioning then", "you don't seem autistic", "don't let it define you!", "you just want an excuse", "but you can (insert stereotype here)"... - @autistic.since.forever “BUT you never struggled with that as a kid.” “buT you got all As in school” “why are you suddenly struggling with all this stuff NOW?” - @_beansproot These comments not only diminish the reality of living with autism but also perpetuate stereotypes about the “spectrum” being a linear scale. Positive and supportive reactions But all's not lost. While negative responses are unfortunately common, there are also examples of understanding and supportive reactions. I instantly disclose once I realize I will talk with them for more than about 10 minutes. It’s a casual disclosure and I decide how long the conversation will go once I see their reaction. My favorite reaction to date: “…. You are? Wow…. We are so much alike. I’ve been really thinking I might be too… can you tell me how you sought your diagnosis and how you deal with everything being too much?” - @neurodivvyd 'please let me know if you need any accommodations or things I can do to be supportive' - @laurart_uk “cool/good to know! Thanks for sharing that with me! Optional: I know every autistic person is different, so Is there anything you want me to know about your specific needs?” - @_beansproot These supportive responses show empathy and a willingness to learn. Filtering out ableism When it comes to disclosing autism, negative reactions can be disheartening. However, it helps to filter out those who are not supportive or understanding. This process can help autistic individuals cultivate a smaller, more supportive social circle, free from ableism and negativity. Negative or dismissive reactions serve as indicators of relationships that may not be worth maintaining. People who respond with disbelief, silence, or hurtful comments reveal their inability to be supportive allies. By recognising and distancing themselves from these individuals, autistic people can protect their mental and emotional well-being. Identifying the true allies Disclosing autism can act as a litmus test for the relationships in one's life. Those who respond with empathy, curiosity, and a willingness to understand are the true allies. They demonstrate their acceptance and support through their words and actions, making it clear that they value and respect the autistic individual's identity. I take the “tell every stranger within 10 seconds of meeting” and then the folk who don't like it never talk to me again. It's a win-win for me. I'm very vocal about ppl being rude to me so if there's rudeness pointed at me I call it out. Usually I disclose in response to them disclosing something. If they get rude at me about autism I get rude about their disclosure. 😂on a more serious note: my job is focused on hiring folk with disabilities, mental or physical, so I'm unmasked there. I'm unmasked in my social circle, and I live with other ND ppl. I honestly haven't gotten a ride response in several years. Not since I moved out of the American Midwest tbh. - @thegriffinnews The importance of kindness and acceptance Autism disclosure can be a slippery slope, often leading to overt bullying, discrimination, or social isolation. The responses shared by our community highlight the urgent need for greater awareness, education, and kindness. By cultivating an environment of acceptance and understanding, we can help autistic individuals feel seen, heard, and valued. Moving forward It is crucial for society to move beyond stereotypes and misconceptions about autism. Simple acts of empathy and understanding can make a significant difference in the lives of autistic individuals, helping to create a more inclusive and supportive community for all. Here's the original post - Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | Understanding Autistic shutdown and how to help someone experiencing it

    A guide for parents and allies to support autistic children and adults < Back Neurodiversity, Parenting Understanding Autistic shutdown and how to help someone experiencing it A guide for parents and allies to support autistic children and adults MMS Staff 13 Aug 2024 2-min read An autistic shutdown kind of feels like when you’ve had constant, discomforting sensory input all day, and by the end of it, you just can’t take anymore. And now your body just wants to ease off the overwhelm and sensory overload by shutting out any more discomforting inputs, and easing off until the senses feel regulated again. Shutdowns are a way for autistic people to cope when they’re overwhelmed by sensory or emotional input. It’s not a choice but a natural response to too much going on. Autistic shutdowns happen when the brain needs a break from all the input (sensory, emotional, physical) it’s constantly processing. As a lot of autistic people can be especially sensitive to sensory inputs - hearing more, feeling more and seeing more than allistic people - these shutdowns can have an especially exhausting effect on autistic people. Unexpected events or sudden changes in plan may cause a lot of stress, leading to a shutdown. Just like every autistic person is different from the other, shutdowns can also differ between different autistic people. This makes them difficult to spot, but once you know what to look for, you can be there to help. What are some signs of an autistic shutdown? The presentations can vary from person to person, but here are some common indicators: Fatigue: The person might seem really tired. Reduced coordination: Unsteady, uncoordinated movements can show up. Quiet: They might reduce or stop talking, or give very brief responses. Detachment: The person might seem emotionally distant or struggle to express their feelings. Passivity: Their usual enthusiasm might be replaced with a more passive attitude. Withdrawal: Avoiding activities they usually enjoy or not responding to social interactions. Seeking Calm: Finding a quiet spot to decompress or engaging in self-soothing actions like stimming. Sometimes there are hints before a full shutdown hits. They might include: Confusion Dissociation Sudden fatigue Headaches Irritability or anger Feeling emotionally numb How to support someone experiencing an Autistic shutdown The first thing you might want to consider is helping the autistic person move away from the space that’s dysregulating them. As a lot of autistic people also frequently experience alexithymia, they might not realise when they’re starting to feel dysregulated. Catching on to the symptoms early might help. Show empathy: Understanding and compassion are crucial. Remember, it’s their body and mind’s response to overwhelm and physical and mental distress. Be patient: Offer your support and don’t ask them to ‘snap’ out of it. Give them space and time to recover at their own pace. Create a calm environment: If possible, help them find a quiet, less stimulating place to rest and self-regulate. Reassurance and comfort: Let them know it’s okay to take a break and that you’re there for them without judgement. Stimming: Autistics often engage in repetitive movements called stims to self-regulate. This can reduce distress from overstimulation. Avoid shaming them: Never blame or criticise, or talk down on them for how they’re feeling. It’s not a temper tantrum or a manipulation tactic; it’s literally their body and mind telling them their current environment doesn’t suit them, and that they need a break. While recovery can take a few minutes or hours, or even days, your understanding and support can make a huge difference in helping them feel better and bounce back. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | Election 2024: Why climate change tops the agenda for India's youth

    India's Gen Z voters rank climate change as a top priority, yet political parties fall short on delivering substantial solutions. < Back Climate, Neurodiversity Election 2024: Why climate change tops the agenda for India's youth India's Gen Z voters rank climate change as a top priority, yet political parties fall short on delivering substantial solutions. Aditi Gangrade 18 May 2024 5-min read As an Indian Gen-Z neurodivergent woman and filmmaker dedicated to social impact stories, I find it imperative to address the urgent concerns of my generation regarding climate change. For 18 million young Indians voting for the first time, climate change is not just a buzzword but a pressing societal issue. According to a Deloitte survey, climate change ranks as the third most important concern for these young voters. This prioritization reflects a profound awareness of the environmental crises that our nation faces. India, with over 80% of its population residing in districts vulnerable to climate-induced disasters, is at a critical juncture. The World Bank warns of rising temperatures, shifting rainfall patterns, declining groundwater levels, retreating glaciers, and severe cyclones. These changes threaten livelihoods, food security, and our economy. The adverse effects are already evident, with more than 9 million people suffering due to climate change, as reported by the World Meteorological Organization (WMO). Rising temperatures disproportionately affect marginalized communities, including low-income families, disabled and neurodivergent individuals, and rural populations. These groups often lack the resources to adapt to extreme weather conditions, resulting in heightened vulnerability. For instance, neurodivergent people may experience increased sensory sensitivities and mental health challenges due to extreme heat, exacerbating existing difficulties. Despite the glaring reality, climate change has scarcely made a mark in election campaigns over the years. Reviewing the 2024 election manifestos, we see a lack of substantial commitment. The Congress manifesto mentions “climate” ten times and includes a dedicated section on “Environment, Climate Change, and Disaster Management.” In contrast, the BJP’s ‘Modi Ki Guarantee 2024’ references it just four times. Both parties propose measures such as Namami Gange, Clean Air Programme, Green Credit, and E-waste management from the BJP, and redefining forest cover and stopping toxic discharges into rivers from Congress. However, these steps are insufficient given the scale of the crisis. Climate activists echo this sentiment. Debasree Das, a Mumbai-based climate activist, highlights the unsustainable practices of the fashion industry, noting that 87% of clothing, equivalent to 40 million tons annually, ends up in landfills. She calls for a revolutionary approach to make the fashion industry more sustainable and reduce waste, as per TOI. Poornima Sai, a 22-year-old climate activist, underscores the need for better urban planning to prevent environmental degradation. Recent landslides in Joshimath and Uttarkashi are stark reminders of the consequences of neglect. Moreover, noise pollution and population control are critical concerns for Gen Z voters, yet they find little mention in party manifestos. The silence on these issues is deafening, especially when they directly impact our quality of life. Our generation is demanding more than token gestures; we seek comprehensive policies and concrete actions. Here are some suggestions from Gen Z voters on climate action: Implement Strict Regulations on Industrial Pollution: Enforce stringent laws to curb emissions from factories and promote cleaner production methods. Promote Sustainable Agriculture: Encourage farming practices that conserve water, reduce pesticide use, and enhance soil health. Invest in Renewable Energy: Increase funding for solar, wind, and other renewable energy projects to reduce reliance on fossil fuels. Enhance Public Transportation: Develop efficient and eco-friendly public transport systems to reduce the carbon footprint from vehicles. Raise Environmental Awareness: Implement educational programs to inform citizens about the importance of sustainability and how they can contribute. Strengthen Disaster Management Systems: Improve early warning systems and disaster response mechanisms to protect vulnerable communities from the impacts of climate-induced disasters. Ensuring timely evacuation and providing adequate relief can save lives and reduce suffering. Support Reforestation Projects: Launch large-scale tree planting drives and protect existing forests to enhance carbon sequestration and biodiversity. Engaging local communities in these projects can ensure their success and sustainability. Improve Waste Management: Develop robust recycling programs and promote the use of biodegradable materials to reduce landfill waste. Implementing strict regulations on plastic use and enhancing municipal waste collection can help manage urban waste more effectively. Encourage Green Building Practices: Promote the construction of energy-efficient buildings through incentives and regulations. Incorporating green roofs, rainwater harvesting systems, and energy-saving technologies can make urban infrastructure more sustainable. Foster International Collaboration: Collaborate with other nations to share knowledge, technology, and resources for tackling climate change. Participating in global climate initiatives and honoring international agreements can enhance India's climate resilience. As a neurodivergent individual, I often experience heightened sensitivity to environmental changes. The rising temperatures and increasing frequency of natural disasters affect not just physical health but mental well-being too. Climate change exacerbates stress, anxiety, and other mental health challenges, making it even more urgent for leaders to act decisively. At Much Much Spectrum, our mission is to make social impact stories accessible and engaging. We believe in amplifying the voices of those affected by climate change and advocating for meaningful change. It’s time for political parties to align with the priorities of Gen Z voters and demonstrate a real commitment to combating climate change. Our future depends on it. What are the climate change policy reforms you want parties to address? Tell us in the comments Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

bottom of page