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A simple guide to understanding nonbinary identities this Nonbinary Awareness Week < Back Gender, LGBTQIA+ What does it mean to be nonbinary A simple guide to understanding nonbinary identities this Nonbinary Awareness Week MMS Staff 9 Jul 2024 3-min read The term “nonbinary” is used to describe those whose gender identity exists outside of the traditional gender binary of male and female. This concept can encompass a spectrum of gender identities, including gender-fluid, bigender, and multigender, among others. While the specific meaning of nonbinary can vary from person to person, it fundamentally signifies an identity that does not fit exclusively within the categories of man or woman. The gender binary To grasp what it means to be nonbinary, it's essential to first understand the gender binary. The gender binary is the classification of gender into two distinct, opposite forms — man and woman. This system often dictates societal expectations regarding behaviour, roles, and appearance based on one's assigned gender at birth. However, the binary view excludes the experiences of those who identify outside these two categories. Understanding nonbinary identities Nonbinary individuals may experience their gender in a multitude of ways. Some might feel a blend of both man and woman, while others may identify as neither. The term itself serves as an umbrella, covering various identities that don't conform to the binary framework. Despite its growing recognition in contemporary society, nonbinary identities have been acknowledged and respected in numerous cultures for centuries. Nonbinary pronouns Pronouns play a crucial role in affirming a nonbinary person’s identity. In a world where gendered language is prevalent, nonbinary individuals often navigate pronouns that best reflect their gender. Some nonbinary people use binary pronouns like “she/ her” or “he/ him,” while others prefer gender-neutral pronouns such as “they/ them,” “ze/ hir,” or “ze/ zir.” The pronouns someone uses can vary based on their environment and feelings of safety. Gentle reminder: It's important to always use the pronouns a person indicates are appropriate for them. If unsure, opt for gender-neutral language or politely ask for their preferred pronouns. Defining nonbinary Most people, including many transgender individuals, identify as either male or female. However, nonbinary people do not neatly fit into these categories. They might blend elements of both genders, identify with neither, or experience a fluid or evolving gender identity. Terms like genderqueer, agender, bigender, and genderfluid reflect the diverse experiences within the nonbinary community. How to identify if you are nonbinary Figuring out if you are nonbinary is a personal journey that involves self-reflection and exploration. Here are some steps that might help: Think about how you feel about your gender. Do you feel like you don’t fully identify as a man or a woman? Educate yourself about different nonbinary identities and see if any resonate with your experiences. Engaging with nonbinary individuals can provide insight and help you understand your own feelings. Try using different pronouns or labels to see which ones feel most comfortable for you. Consider speaking with a therapist or joining a support group where you can discuss your feelings in a safe and understanding environment. Remember, your gender identity is unique to you, and it’s okay if it takes time to understand and articulate it. How to be respectful and supportive of nonbinary people: Always use the name and pronouns a nonbinary person requests. Avoid asking about their previous names or pronouns. You can't determine someone's gender identity based on appearance. If unsure about pronouns, ask respectfully. Support policies that allow nonbinary people to express their gender freely and safely in public spaces, workplaces, and schools. Recognize the challenges nonbinary individuals face in gendered spaces like restrooms and support their choice of where they feel safest. Engage with nonbinary people to understand their experiences and perspectives. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

The gender gap in autism diagnosis: Why so many autistic girls slip through the cracks < Back Gender, Neurodiversity Why autistic women and girls often go undiagnosed The gender gap in autism diagnosis: Why so many autistic girls slip through the cracks Aditi Gangrade 18 May 2024 3-min read Autism Spectrum Disorder (ASD) has long been associated with boys. This misconception, fueled by outdated research and societal biases, leads to a concerning reality: autistic girls are diagnosed four times less often than autistic boys according to a 2017 study by the Autism Research Centre [Baron-Cohen et al., 2017]. This disparity has significant consequences, delaying access to crucial support and hindering their ability to thrive. Understanding the reasons behind this underdiagnosis or misdiagnosis is critical to providing equitable and inclusive healthcare systems for autistic women and girls. Masking the difference: One key factor is "social camouflaging." Driven by a strong desire to connect, autistic women and girls develop exceptional abilities to mimic social behaviors. Imagine this: you spend your life feeling like a chameleon, meticulously blending into your surroundings. You observe social interactions, mimicking what seems "normal" even though it feels foreign. This constant performance can be exhausting, but it's the only way you know how to navigate a world that doesn't quite make sense. That, in a nutshell, is what life can be like for many autistic women and girls. Research by Dr. Sarah Cassidy suggests that autistic girls are more likely to engage in social camouflaging than boys, further complicating diagnosis. Beyond the Stereotypes: Traditional diagnostic tools, shaped by research primarily focused on autistic boys, often miss the diverse ways autism presents in people across the gender spectrum. These tools might emphasize restricted interests in specific topics or repetitive behaviors like flapping hands. However, autistic individuals might have a wide range of interests, and repetitive behaviors can manifest in more subtle ways like intense focus on routines or organization. This mismatch between symptom presentation and diagnostic criteria, coupled with societal conditioning that leads girls and women to internalize their struggles, can lead to missed diagnoses. The Internal Storm: Many autistic women experience their challenges internally. Sensory overload might manifest as anxiety or meltdowns behind closed doors. Social difficulties can translate into depression or a constant feeling of social awkwardness rather than outward outbursts. This internalization makes it difficult for others to recognize the underlying cause of these struggles, further delaying diagnosis. A study published in the Journal of Child Psychology and Psychiatry [Lai et al., 2011] found that autistic girls are more likely to experience internalizing symptoms like anxiety and depression compared to autistic boys. This underdiagnosis has a profound impact on the lives of autistic women. Studies suggest they are more likely to experience mental health challenges, unemployment, and social isolation. The Impact of a Delayed Diagnosis: A late or missed diagnosis has significant consequences. We might struggle with social relationships, navigating social situations, experience chronic anxiety, or have difficulty managing daily routines. This can lead to feelings of isolation, depression, being misunderstood, inadequacy, low self-esteem, and a sense of not belonging. Research published in the Journal of Autism and Developmental Disorders [Chown et al., 2019] found autistic women are twice as likely to report experiencing an eating disorder compared to neurotypical women. Difficulties with social communication and challenges adapting to workplace environments can make it difficult for autistic women to find and maintain employment. A study by the Autism Self Advocacy Network [Autism Self Advocacy Network] found that autistic adults are four times more likely to be unemployed compared to the general population. Breaking the Cycle: So, what can be done? Awareness is key: Learn about the diverse presentations of autism in females. Organizations like the Autistic Self Advocacy Network [ASAN] and IHeartAspies provide excellent resources. Advocate for Inclusive Diagnostic Tools: Research efforts should focus on understanding autism across the gender spectrum. This can lead to more comprehensive diagnostic tools that capture the diverse experiences of autistic women and girls. Promote Self-Advocacy: Encourage girls and women who suspect they might be autistic to seek evaluation and support. Resources from organizations like the Autistic Women's Network [AWN] can be helpful in this journey. Challenge Societal Expectations: Break down stereotypes surrounding autism, and promote understanding of how it can manifest differently in women and girls. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Exploring the intersection of gender, sexuality, and neurodivergence where fluidity and individuality thrive < Back Neurodiversity, Gender, LGBTQIA+ Being atypical isn’t a deficit: My Neuroqueer identity Exploring the intersection of gender, sexuality, and neurodivergence where fluidity and individuality thrive Soumya Mishra 28 Jul 2024 5-min read A few years back when I attended a workshop, one of my fellow participants addressed me by “they” pronoun, and I felt incredibly seen at that moment. Up until then, I was internally struggling to accept the non-binary messiness of gender, even though growing up I have had plenty of instances when I felt like a square peg being forced into a round hole situation. When it comes to discourses around gender, sexuality or neurodivergence, we often come across the word “spectrum.” The idea behind “spectrum” is that it encompasses a range of understandings, views and opinions on these subjects. But what if, instead of a range, it was a vast universe where everyone could be whatever they wanted? Each individual is a unique star and can be their most authentic self here. That’s what the neuroqueer space means to me. My relationship with gender, sexuality and neurodivergence is deeply neuroqueer. The neuroqueer space is a radical space where non-conformist notions concerning gender, sexuality and neurodivergence are celebrated, which is in contrast to a world where cis-heteronormativity and neuronormativity are enforced. Being neurodivergent means seeing and interacting with the world in atypical ways. And since neurodivergence affects how I see and interact with the world, it has also shaped my understanding of gender and sexuality. Usually, gender identity is constructed from a neurotypical lens, completely disregarding neurodivergent perspectives. However, neurodivergent folx experience a queering of the mind. So neatly defined identity labels based on neurotypical standards such as “boy,” “girl,” “man” and “woman” mean differently to many of us. Even as an adult, there are parts of me that are more childlike than others around me. This entails how I experience and express my feelings, my innate curiosity or whimsical behaviour. And this has invited comments and infantilisation from those around me. For instance, I’m often told I seem much younger than my age because my behaviour doesn’t coincide with what is considered age-appropriate. So from my neuroqueer perspective, even the construction of cis-gender identity is complex, and sometimes, it is closer to the idea of queerness as it defies what is perceived as “normal.” Now, while I started using “she/ they” pronouns initially to be more inclusive and break the gender binary, overtime it has become more than that. “They” can be both singular and plural; it’s fluid. I’m an individual whose identity has been shaped by numerous experiences, which can be truly understood by understanding the context. To me, “she/ they” makes room for all that and more. So even though I’ve been socialised as a “woman,” there are moments when I feel the term does not encapsulate all my feelings. As neuroqueerness celebrates fluidity, it has given me the space to explore the idea of gender away from neurotypicality. In addition, by virtue of my asexuality, I experience little to no sexual attraction. But I’m romantically attracted towards two or more genders, which is atypical in this allonormative society that reinforces compulsory sexuality and heteronormativity. My asexuality requires no “fixing.” Like my neurodivergence, my asexuality, too, subverts the normative culture, but both of them are described in terms of “lacks.” While asexuality is commonly described as an absence of sexual attraction, neurodivergence is defined as having social impairments. But, being atypical isn’t a deficit. Feminist theorist Bell Hooks wrote: “‘Queer’ not as being about who you’re having sex with (that can be a dimension of it); but ‘queer’ as being about the self that is at odds with everything around it and that has to invent and create and find a place to speak and to thrive and to live.” Building on her argument around queerness, when queer theory and the neurodiversity paradigm inform one another, there is a further queering of the body and the mind. In this resulting transformative space, which is the neuroqueer space, normative understanding of gender, sexuality and neurodivergence can be challenged. My neuroqueer bodymind isn’t fixed or singular, nor does it exist in a vacuum. It has been shaped by numerous experiences and can only be understood by situating my experiences contextually. In their book Authoring Autism, M Remi Yergeau eloquently argues, “Neuroqueering signifies a generous and inter-bodily gesturing, one that postures beyond brains, bones, and dermis; one that waves in a plurality of identities, orientations, affective stances, and lived experiences, modes ranging from autism to deafness to trauma to asexuality.” Simply put, to me, neuroqueering is resisting neatly defined categories and creating a space where even the messier parts of myself can thrive without giving in to binaries. Neuroqueerness problematises neat identity labels, making room for fluidity and plurality of identities, orientations and lived experiences by disrupting cis-heteronormativity and neuronormativity as well as defying societal expectations around what is considered “normal” and “abnormal.” My lived experiences and the journey I’ve undertaken to reach here are complex and difficult to disentangle from one another. “Neuroqueer” is all-encompassing without restrictive labels and diagnoses. It’s a space where I can make sense of my neuroqueer bodymind, connect with folx who’ve similar lived realities, and be a part of a community to experience a sense of belongingness. Glossary: Neuroqueer - It is both an identity and a verb. An individual who diverges from dominant societal norms, considers them to be neurologically queer, rejecting normative ideas around gender, sexuality and neurocognitive functioning. Neuronormativity - Upholding a set of rules, values and ideas around neuro-cognitive functioning which suggest that certain types of behaviour are normal, while others are not. Cis-heteronormativity - The idea that being cis-gender and heterosexual is the norm and such people are superior in society. Neurotypicality - The state of not being associated with neurodivergent behaviours. Asexuality - A type of sexual orientation wherein people experience little to no sexual attraction towards others, but may or may not engage in sexual activity. Allonormative - The idea that all human beings experience sexual and romantic attraction, and that’s the norm. Soumya Mishra (she/ they) is a neuroqueer development sector professional with over 6 years of work experience, who is primarily interested in leveraging digital mediums to amplify marginalised voices, bridge existing gaps, promote inclusivity and accessibility. Their work and approaches are informed by their lived experiences. Building a community and fostering a sense of belongingness have been crucial in Soumya's work approach. As a personal project, they're also building a podcast — Atypical Dikkatein — to chronicle the stories of queer-disabled folx in India as these stories are often relegated to the margins. Follow Soumya on LinkedIn Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Hearing health: Tips, sign language benefits, and inclusive communication strategies < Back Disability, News, Health Playback singer Alka Yagnik diagnosed with rare sensory hearing loss Hearing health: Tips, sign language benefits, and inclusive communication strategies MMS Staff 19 Jun 2024 5-min read Renowned Bollywood playback singer Alka Yagnik recently revealed her diagnosis of a rare hearing disorder, raising awareness and cautioning her fans about the dangers of loud music. The singer shared the news on her Instagram account , talking about her sudden and alarming experience. Yagnik, known for singing numerous hit Bollywood songs, described the incident that led to her diagnosis. “A few weeks ago, as I walked out of a flight, I suddenly felt like I was not able to hear anything,” she said. The unsettling experience prompted her to seek medical attention, leading to the diagnosis of rare sensorineural nerve hearing loss (SNHL). “To all my fans, friends, followers, and well-wishers. A few weeks ago, as I walked out of a flight, I suddenly felt I was not able to hear anything. Having mustered some courage in the weeks following the episode, I want to break my silence now for all my friends and well-wishers who have been asking me why I’m missing in action. It has been diagnosed by my doctors as a rare sensory neural nerve hearing loss, due to a viral attack (sic),” she wrote on her socials. Yagnik's announcement has sparked an outpouring of support from her colleagues and fans. In her message, she expressed her shock and the difficulty of coming to terms with the diagnosis, also issuing a word of caution to her fans and younger colleagues in the music industry: “For my fans and young colleagues, I would add a word of caution regarding exposure to very loud music and headphones.” The singer emphasised the importance of taking care of one's hearing health, highlighting the risks associated with prolonged exposure to loud music. “One day, I wish to share the health perils of my professional life. With all your love and support, I am hoping to recalibrate my life and come back to you soon. Your support and understanding will mean the world to me in this critical hour,” she added. Alka Yagnik's candid revelation about her health serves as a reminder of the often overlooked health risks in the entertainment industry, particularly for musicians who are frequently exposed to high decibel sound levels. Tips for taking care of hearing health Avoid prolonged exposure to loud sounds such as music concerts, heavy traffic, and noisy machinery. Use ear protection if you cannot avoid these environments. Invest in noise-cancelling headphones to reduce ambient noise, allowing you to listen to music or other audio at lower volumes. Follow the 60/60 rule. When using headphones, listen at no more than 60% of the maximum volume for no longer than 60 minutes at a time. Give your ears rest by taking regular breaks from listening to music or other audio, especially through headphones. Keep the volume at a reasonable level when watching TV, listening to music, or using earbuds. If someone next to you can hear your music, it’s too loud. Wear earplugs or earmuffs in noisy environments like concerts, construction sites, or while using power tools. Have your hearing tested regularly, especially if you are exposed to loud environments frequently or notice any changes in your hearing. Never use cotton swabs, bobby pins, or other objects to clean your ears. This can cause damage to the ear canal and eardrum. Whenever possible, distance yourself from sources of loud noise. Moving away from the noise can significantly reduce its impact on your ears. Use ear drops or seek professional help to remove earwax buildup rather than trying to clean it yourself. After swimming or showering, dry your ears gently. Excess moisture can lead to ear infections, which can affect your hearing. Smoking and exposure to secondhand smoke can negatively affect your hearing health. Regular exercise improves blood flow to all parts of your body, including your ears, helping to maintain good hearing health. High stress and anxiety levels can contribute to tinnitus (ringing in the ears) and hearing loss. Practice stress management techniques like meditation and deep breathing. Some medications can affect hearing. Always consult your doctor about the potential side effects of medications you are taking. Disability and hearing loss can happen to anyone at any time, even with the best care for one's health. This is why we need to be proactive in ensuring accessibility and inclusion for people with disabilities. By making our spaces and resources accessible to everyone, we create an inclusive environment that benefits all members of our community. Importance of teaching sign language Yagnik’s acquired hearing loss brings to light the importance of teaching sign language to everyone from a young age. Sign language is not only essential for communication with D/ deaf folx and people with hearing impairments, but it also provides a vital communication tool for anyone who may experience hearing loss or other disabilities later in life. Learning sign language fosters inclusivity and ensures that communication barriers can be overcome, making society more accessible and empathetic. Teaching sign language from a young age ensures that more people can communicate effectively with those who are D/ deaf or hard of hearing (HoH), promoting a more inclusive society. Additionally, it provides a critical skill that can be invaluable if one ever experiences hearing loss or other disabilities, ensuring that they can still communicate and engage with the world around them. Tips for including people experiencing hearing loss: Speak clearly and at a normal pace. Avoid shouting or exaggerating your mouth movements. Face the person when speaking to them, ensuring they can see your lips and facial expressions, which can aid in understanding. Reduce or eliminate background noise when having conversations to make it easier for the person with hearing loss to focus on the speaker. Utilise devices such as hearing aids to enhance sound quality for individuals with hearing loss. Offer written summaries or notes for meetings, presentations, and important conversations to ensure that the information is accessible. Familiarise yourself with basic sign language phrases to facilitate communication and demonstrate inclusivity. Incorporate visual aids like slides, charts, and videos with captions during presentations and meetings. Show patience and understanding if the person asks for repetition or clarification. Avoid showing frustration. Arrange seating in a circular or U-shaped pattern during meetings to ensure everyone can see each other and participate fully. Foster an environment where individuals feel comfortable expressing their communication preferences and needs. Use real-time captioning services for events, meetings, and webinars to make spoken content accessible to everyone. Complement your speech with appropriate gestures and body language to convey your message more effectively. Offer training sessions for employees and team members to raise awareness about hearing loss and teach effective communication strategies. Respect the individual’s privacy and confidentiality regarding their hearing loss and any assistive devices they use. Ensure social activities and gatherings are inclusive by choosing venues with good acoustics and considering the needs of individuals with hearing loss. Regularly ask individuals with hearing loss for feedback on how you can improve inclusivity and communication in your interactions and environments. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Sunflower lanyard-wearing characters signal a powerful step towards inclusion in toymaker’s universe < Back Neurodiversity, News, Disability New LEGO characters aim to represent hidden disabilities such as autism Sunflower lanyard-wearing characters signal a powerful step towards inclusion in toymaker’s universe MMS Staff 11 Dec 2024 3-min read In a significant step towards fostering inclusivity, global toymaker Lego has announced the introduction of characters wearing sunflower lanyards, a globally recognised symbol of hidden disabilities such as autism, ADHD, and chronic illnesses. This initiative is part of Lego's broader commitment to ensuring its toy universe mirrors the diverse realities of the world. The sunflower lanyard, developed by Hidden Disabilities Sunflower, offers a discreet way for individuals with hidden disabilities to signal that they may require extra understanding or support. Recognised in over 90 countries, the lanyard has become a beacon for inclusion and awareness, providing a simple yet powerful tool for advocacy. Lego has been a trendsetter in creating diverse and representative characters. Over the years, the company has introduced figures with Down Syndrome, limb differences, anxiety, and vitiligo, earning praise for its thoughtful approach to inclusivity. The new sunflower lanyard-wearing characters span a range of age groups and products, from the preschooler-friendly Duplo sets to the intricate Icons range for adult collectors. Lauren von Stackelberg, Lego Group's Chief Diversity and Inclusion Officer, emphasized the responsibility the brand feels in shaping young minds: As one of the most loved toy brands, we know that our choices about which characters we make and what stories we tell about them have a big impact on how kids learn to perceive the world. We hope that modeling a world in which all kinds of people are celebrated will help us all embrace diversity, value inclusivity, and remove stigma. ” Among the upcoming sets is the Duplo First Time at the Airport, aimed at helping toddlers process their feelings about travel. The set includes a child character wearing a sunflower lanyard, alongside a suitcase and a teddy bear. For older children, the Friends Airport Scene features Ryan, a university student wearing noise-reducing headphones and a sunflower lanyard to illustrate the sensory considerations of neurodivergent individuals. The Icons Tudor Corner set, designed for adult collectors, integrates hidden disability representation subtly but meaningfully. It includes a neurodivergent character who keeps her sunflower lanyard by her door, a detail reflecting the everyday lives of many individuals with invisible disabilities. Paul White, Chief Executive of Hidden Disabilities Sunflower, applauded Lego's initiative, noting: Opting to wear the lanyard is a simple way of sharing that you have a hidden disability, letting everyone know that you might need extra help, understanding, or just more time. It’s a reminder that disability isn’t always visible — only 7% of disabled people use wheelchairs, yet many face challenges requiring support. ” Lego’s move comes at a time when awareness about hidden disabilities is growing, but societal understanding remains limited. In the UK, for instance, one in five people live with a disability, with 80% of these being non-visible. Disabilities can range from neurological conditions like autism and ADHD to chronic illnesses such as fibromyalgia and Parkinson’s disease. By incorporating sunflower lanyard characters into its range, Lego is challenging stereotypes and encouraging conversations about the lived experiences of those with hidden disabilities. Research by the company highlights a generational shift: 88% of children surveyed believe in treating everyone equally, and 83% want toys that teach them about differences. Through thoughtful representation, Lego is shaping a generation that values diversity and empathy. Its commitment extends beyond the toy box, serving as a call to action for society to recognise and embrace the nuances of disability. As Paul White noted, creating an accepting society benefits everyone: A more inclusive world raises the bar for everyone, enabling people with disabilities to do everything they should be able to do. ” Lego’s sunflower lanyard characters are not just toys — they’re a step toward a world where understanding, support, and acceptance are the norm. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

A comprehensive guide to understand Tourette's in children and adults < Back Neurodiversity Tourette Syndrome: Symptoms, causes, management & support A comprehensive guide to understand Tourette's in children and adults MMS Staff 7 Jun 2024 4-min read Tourette Syndrome is a nervous system condition characterised by involuntary sounds and movements, called ‘tics’. While the core symptoms remain the same throughout life, how Tourette's syndrome presents itself can differ between children and adults. Tics typically appear between ages 5 and 9. ADHD and OCD are more prevalent in children and adults with Tourette’s. Signs and traits of Tourette Syndrome Tics are the defining characteristic of Tourette syndrome. These are sudden, brief bursts of movement or sound that can range from mild to severe. In some cases, severe tics can make it difficult to communicate, do daily activities. This might affect overall well-being. Types of tics: Motor tics: These involve involuntary movements of different body parts. Simple motor tics: These are quick and repetitive, affecting a limited number of muscles. Examples include blinking, head jerking, shrugging, or twitching the nose. Complex motor tics: These involve more coordinated movements of several muscles. Like touching or smelling objects repeatedly, copying someone else's movements, hopping, or making obscene gestures. Vocal tics: These are involuntary sounds a person might make. Simple vocal tics: These are brief, simple sounds like grunting, coughing, throat clearing, or barking. Complex vocal tics: These are more elaborate vocalisations. Like repeating your own words or phrases (echolalia), repeating what someone else says (coprolalia), or using swear words (copropraxia). Understanding tics: Tics can vary in terms of how often they happen (frequency), how strong they are (severity), and what kind of tic they are (type). Factors such as illness, stress, anxiety, tiredness, or excitement can make tics worse. They can even occur during sleep. Tics can change throughout a person's life. Often, they worsen in the early teenage years and improve as one transitions into adulthood. Before a tic happens, some people might feel an uncomfortable sensation in their body, like an itch, tingle, or tension. Performing the tic can actually relieve this feeling. Some people can suppress a tic for a short time, but it takes a lot of effort. Myths vs facts: Demystifying tics and Tourette Syndrome Myth: Everyone with Tourette syndrome yells swear words all the time. Fact: Only about 10-15% of people with Tourette syndrome experience coprolalia, the involuntary use of swear words. Myth: Tics are caused by bad parenting or a lack of discipline. Fact: Tourette syndrome is a neurological disorder, likely with a genetic component. There's no link to upbringing or a person's character. Myth: People with tics can easily control them if they try hard enough. Fact: Tics are involuntary, though some people can suppress them for a short while with significant effort. This suppression often leads to a stronger tic later, and might be severely uncomfortable for the person. Myth: Tics are a sign of intelligence problems. Fact: Tourette syndrome has no bearing on intelligence. Many people with Tourette syndrome are highly intelligent and successful. Myth: Tics only affect children. Fact: While tics often start in childhood, they can persist into adulthood. However, symptoms often improve as individuals transition into adulthood. Myth: Tics are contagious. Fact: Tics are not contagious. You cannot "catch" Tourette syndrome from someone else. Myth: Everyone who has tics has Tourette syndrome. Fact: Tics can be a symptom of other conditions as well. Tourette syndrome is a specific diagnosis with stricter criteria, including both motor and vocal tics lasting for more than a year. Myth: Stress causes tics. Fact: Stress can worsen existing tics, but it doesn't cause them. The underlying cause of Tourette syndrome is still being researched. Myth: People with tics are always frustrated or angry. Fact: While some people with tics may experience frustration due to their symptoms or negative biases, Tourette syndrome itself is not a mental health disorder and doesn't dictate emotions. How to interact with someone with Tourette Syndrome Sometimes social interactions can be exhausting for people with Tourette’s because of negative biases, ableist comments, and a general lack of awareness among people. Here are some things to remember if you want to be mindful of the experiences of someone who has Tourette’s: Tics are involuntary: Tics are uncontrollable movements or sounds. Scolding or asking someone to stop their tics is not cool. Focus on the person: Treat the person with Tourette’s just as you would anyone else. Engage in conversation, share interests, and build a rapport based on who they are, not their tics. Avoid prying: Skip questions like "What's wrong with you?" or "Can you control that?" These can be insensitive and embarrassing. Open communication: If appropriate, consider explaining Tourette syndrome to a child with TS. This can help them understand their own body and feel less anxious. Also try and sensitise their peers and friend circle. Empathy and support: Help the person with Tourette’s feel comfortable and accepted. Avoid stares or making them feel like their tics are a burden. Managing tics: Stress reduction techniques: Offer support through relaxation techniques like deep breathing or mindfulness. These can help manage stress and potentially reduce tic frequency or intensity. Focus on solutions: If someone with TS has tics that could cause harm, focus on collaborative solutions. This might involve finding fidget toys or adapting activities to reduce risk. Remember: Everyone experiences Tourette’s differently. Be patient, understanding, and create a space where the person with TS feels comfortable being themselves. Disclaimer: This article is intended for general awareness and understanding only. It is not written by medical professionals and should not be considered as medical advice. For professional diagnosis or treatment, please consult a qualified healthcare provider. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Centre partners with institute for early integration of accessibility into education < Back Disability, News, Education IIT KGP to offer course on disability accessible design Centre partners with institute for early integration of accessibility into education MMS Staff 15 Jul 2024 2-min read Civil engineering students at Indian Institute of Technology Kharagpur (IIT-KGP) will soon have the opportunity to study accessible building design, thanks to a new partnership between the Centre’s disability affairs department and the institute. This course - currently an elective - will be available to students in the sixth and seventh semesters starting from the 2024-25 academic session. Two professors from the institute’s Department of Architecture and Regional Planning, Subrata Chattopadhyay and Haimenti Banerjee, are reportedly working on developing the Accessible Built Environment course, along with the Department of Empowerment of Persons with Disabilities (DEPwD). The course will cover such topics as smart and inclusive habitats, accessibility and infrastructure-driven liveability, and inclusive urban planning. The Centre subsequently plans to introduce the course in 27 other institutes, including other IITs. Presently, the course will carry 30 credits, and it aims to integrate accessibility into education early so that future engineers can incorporate it into their building designs. Accessible infrastructure - the need of the hour - still remains a distant dream in India despite the Rights for Persons with Disabilities Act of 2016 (RPwD Act) mandating all existing public buildings become accessible within five years of the passing of the act. Over the next three years, the course will be an elective at IIT-Kharagpur and will likely become a mandatory subject thereafter. Rajesh Aggarwal, Disability Affairs Secretary, emphasised the importance of this initiative, stating, “The objective is to integrate accessibility into education early so that students incorporate it into building design.” Previously, IIT-Kharagpur collaborated with the National Institute of Urban Affairs (NIUA) on the Building Accessible Safe and Inclusive Indian Cities (BASIIC) initiative. In addition to IIT-Kharagpur, the disability affairs department is in discussions with the Council of Architecture to include this subject in their curriculum as well. A senior official from IIT-Kharagpur highlighted the need for this course, saying, “Constructing accessible buildings needs experts and it is important that our future infrastructure builders have professional training about the same.” This initiative is part of the government’s Accessible India 2.0 campaign, which aims to achieve universal accessibility for persons with disabilities (PwDs). The Accessible India campaign focuses on making buildings and transport systems across the country accessible for people with disabilities. Under this campaign, access audits were conducted on 1,671 buildings across 48 cities, and retrofitting work has been sanctioned for 1,314 buildings, with 623 buildings already retrofitted in 20 states. The norms for retrofitting, as specified in section 44 of the Persons with Disabilities Act, include creating ramps in public buildings, modifying toilets for wheelchair users, and installing Braille symbols in elevators. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Kartik Aaryan-starrer Chandu Champion is a tribute to the 1965 war hero & para athlete from India < Back Disability, News New film celebrates paralympic gold medalist Murlikant Petkar Kartik Aaryan-starrer Chandu Champion is a tribute to the 1965 war hero & para athlete from India MMS Staff 14 Jun 2024 3-min read Bollywood - at long last - seems to be going big on disabled stories. After the release and success of the Rajkumar Rao-starrer Srikanth, based on the life of visually-impaired entrepreneur Srikanth Bolla, director Kabir Khan and producer Sajid Nadiadwala have teamed up on Chandu Champion, which hit theatres today. Chandu Champion is a sports drama starring Kartik Aaryan. The film is based on the life of Murlikant Petkar, an ex-jawan in the Indian Army who went on to become India's first Paralympic gold medalist, tracing his journey from soldier to ace sportsman. From Sangli to the global stage Born on November 1, 1944 in Peth Islampur, Maharashtra, Petkar developed a keen interest in athletics early on in life, particularly wrestling and hockey. Even after joining the Indian Army, he continued to excel in sports. According to his website , the 1965 Indo-Pakistan war left him severely injured and with a permanent spinal cord injury as well as memory loss. Acquiring a disability Within 2 years, Petkar was well on the road to recovery. In 1968, he was already participating and making a mark in state-level sports such as shot-put, javelin throw, discus throw, weightlifting, table tennis and archery. During this time, Petkar trained vigorously, mastering the freestyle swimming technique with just one functional arm. And sure enough, he clinched gold in the 50-metre freestyle swimming event at the 1972 Summer Paralympics held in Germany, showing the world that success in sport isn’t reserved only for those who fit a traditional athletic mould. Petkar also set a world record with a time of 37.33 seconds, one that stood for many years. Petkar has continued to be involved in sports and has been an advocate for sports and the rights of disabled individuals in India. He has received various awards and recognition, though many feel his contributions and achievements have not received the level of recognition they deserve. In 2018, the government of India honoured him with the Padma Shri, one of the country's highest civilian awards, acknowledging his contributions and achievements in sports. Recognition and representation Chandu Champion releases at a crucial time in history, when discussions around the portrayal of disabled individuals in media are increasingly becoming more and more prominent, and disability advocacy is at the highest it has been. But all said and done, as a society we still need to deeply reflect on how disabled athletes - and people in general - are represented in our films and TV. While the stories of disabled people need to be told, we also need to make sure that their portrayals do not oversimplify their lives but instead offer a nuanced view of their lived experiences. It is now more crucial than ever to discuss the delicate line between celebrating achievements and veering into the territory of inspiration porn. It is also very important to remember that disabled people do not exist only to make the able-bodied feel better about their own lives. If you’ve watched Chandu Champion, we’re keen to hear your thoughts about the disability representation in the movie. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

The Mexican lawyer’s journey to success highlights the power of accommodations, access and community support < Back Disability, News, Education Ana Victoria Espino De Santiago: World’s first Down Syndrome lawyer The Mexican lawyer’s journey to success highlights the power of accommodations, access and community support MMS Staff 22 Aug 2024 1-min read Ana Victoria Espino De Santiago, a young woman from Zacatecas, Mexico, has recently become the world’s first lawyer with Down Syndrome. She recently graduated with a degree in Law from the Benemérita Universidad Autónoma de Zacatecas (BUAZ). Born in 1999, Ana Victoria’s journey to this milestone is testament to what accommodations, accessibility and the right support systems can do for disabled people. From a very young age, Ana Victoria’s parents, Marisol and Jesús, instilled in her a deep love for education and the arts. They created a nurturing environment that allowed her to flourish and pursue her passions. This support system proved crucial as Ana Victoria navigated the challenges of an education system that was not equipped to meet her needs. Determined to avoid the discrimination she might face in a traditional classroom, Ana Victoria completed her high school education online. She then enrolled at the Benemérita Universidad Autónoma de Zacatecas to study law. It was here that she encountered one of her greatest challenges: a legal education system unprepared for her specific needs. With the help of a dedicated shadow professor, known as a ‘maestra sombra,’ who provided personalised support, she went on with studies. But even before Ana Victoria completed her law degree, she was making her mark as an advocate for disability rights. She actively participated in legislative forums, sharing her story and advocating for the inclusion of people with disabilities. Her contributions to these discussions were a vital part of her growing understanding of the legal field. Ana Victoria, also an accomplished artist, has held several painting exhibitions since 2014, showcasing her talent at prestigious venues, including the lobby of the Congress of the Union in Mexico City. Her collection, titled “Desde mi cielo” (“From My Sky”), was met with acclaim. Ana Victoria says her goal is not just personal achievement but to pave the way for others with disabilities to occupy decision-making spaces in society. A fervent advocate for disability rights, she is using her platform to push for greater inclusion and disability representation in all sectors. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Highlighting nature doesn’t discriminate, the Channel 4 ad appends “They’re so good, considering…” with “Considering What?” < Back Disability, Media, News Paralympics 2024 campaign challenges perceptions about Paralympians Highlighting nature doesn’t discriminate, the Channel 4 ad appends “They’re so good, considering…” with “Considering What?” MMS Staff 7 Aug 2024 2-min read British broadcaster Channel 4 has launched its new campaign film ‘Considering What?’ ahead of the Paris 2024 Paralympic Games. Created by Channel 4’s in-house agency 4creative, the campaign seeks to challenge the public's perceptions of Paralympians, encouraging viewers to see them as elite athletes rather than competitors “overcoming” their disabilities. The campaign launched on July 12, and comes after research commissioned by Channel 4 revealed that nearly 60 percent of viewers watch the Paralympics to ‘see athletes overcoming their disabilities,’ whereas only 37 percent watch it for ‘exciting sporting competition.’ The campaign aims to shift this narrative, focusing on the athletes' sporting excellence. The video personifies the elements of the world — gravity, friction, and time — showing that these elements make no exceptions for any athlete, regardless of disability. Gravity is depicted as a taunting, shirtless man, friction appears as an abrasive racer in a yellow sports car, and time is personified as a woman with a stopwatch. The elements, respectively, are shown challenging wheelchair rugby star Aaron Phipps, multi-gold medallist Sarah Storey and sprinter Emmanuel Oyinbo-Coker. The spin here is that the film shows athletes overcoming these elements, not their own disabilities. Simultaneously, the film is capturing the reactions of audiences watching the Paralympics, some of whom - although well-intentioned - say things like: “He’s incredible… for someone like that.” and “They’re so brave, considering…” “Considering what?” the ad asks. Lynsey Atkin, Executive Creative Director of 4creative, explains : “Excellence is excellent, no caveats. How strange that as audiences we watch one of the world’s most elite sporting events with our heads tilted and our amazement seemingly tempered. Gravity, friction, time — the unchangeable forces of our world dictate what it means to be the best on the pitch, in the pool, on the court, on the track. They offer no head starts, no free passes, no patronising pat on the head and another go around.” Supporting the TV campaign is an out-of-home campaign, featuring posters of Paralympians and a mural by disabled artist Florence Burns. These collaterals convey the ‘Considering What?’ message by adding a strikethrough across well-meaning but patronising phrases that are commonly associated with Paralympic athletes. Channel 4’s Chief Marketing Officer Katie Jackson highlights the significance of the campaign: “... The Paralympics is one of the greatest sporting events in the world, drawing many millions of viewers. And that’s just it. This is sport, where athletic prowess takes centre stage and excellence wins above all else. As we show Paralympians battling against the very real forces of our world, we wanted to highlight the pure power and energy of world-class athleticism. Because at the end of the day, sport doesn’t care about disability. Paris, we’re coming for you.” Watch the full film here and let us know your thoughts below. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS